Every year, WegoHealth has their annual Health Awards. There are various categories that honor Patient Advocates/Leaders who are active on various social media platforms. I’m so touched and honored to say that I have been nominated. This year, people were kind enough to nominate me in two categories. Click on the badges to vote for …
I love music. I love concerts. The more my disability progresses, the harder it is for me to attend concerts. See I’m one of those people in the middle. I definitely struggle with mobility, but I’m not truly in need of a wheelchair. I’m a “need-a-cane-some-of-the-time” kind of person. Concerts tend to be in big …
I’ve written many times about my fear of losing health insurance due to my pre-existing conditions. Recently, the Justice Department has decided to not defend the Affordable Care Act in court. Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions. According the …
I’m the type of rheumatology patients who has “normal” blood work. My vitamin D is typically wonky but everything else come back clear. No explanation as to why I’m so tired. No explanation for my swollen joints. Now don’t get me wrong, I DON’T WANT anything to be wrong, I just want an explanation. I …
I originally wrote this piece as a part of Rheumatoid Arthritis Blog Week. I decided to redo it a bit for World Autoimmune Arthritis Day. I often need to remind myself of all I have been through with this disease. Also, to show others that I took me almost 30 years to get any sort …
I was recently asked to write for the #spoonie group The Unchargeables. This is my first piece for them. Check them out. There are some great blogs on their site. Social Media: It’s a Stranger Thing… The recent security issues on Facebook have a lot of people wondering if they should delete their accounts. I …
I recently posted about my big diet change. For about one month, I stuck to it like glue. I had one cheat day that clocked in around 2200 calories, but overall, I stuck to my plan of 1200 calories or less. I removed gluten, dairy, and salt. I also limited carbs and sugar. I was …
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