Making lemonade…

A year ago, I wrote a book about my dog, Georgia Grace.  Georgia is a Cavalier King Charles Spaniel who lives with multiple, serious chronic illnesses including the top 3:  Syringomyelia, Chronic Valvular Heart Disease, and Diabetes.   I was told her life expectancy was three years.  Today, she is 10 years, 6 months and […]

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Daring to believe…

I just recently started to feel like my new medication is working.  It’s kind of shocking.  My pain level is so much more tolerable.  I still have pain, but I can make it all day without taking extra meds.  My swelling is also getting better.  I still swell when I overdo it, but for the […]

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Oh the places we will go…

I’ve not taken a proper vacation since my dog was diagnosed with diabetes.  I refused to leave her for over two years until this past September, when I traveled to Washington DC for 2 nights for a patient advocacy trip.  I admit that I was a wreck until I had her back in my arms. […]

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RD Blogweek Day 5: Advice…

I’m proud to participate in the 5th annual RA Blog Week.  Today’s topic: Advice – What advice would you give to your newly diagnosed self after what you’ve learned living with RD?   Today has been a very difficult day.  Not because of my help, but because of my dog’s health.  The past three days […]

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RD Blog Week: Day4: Community

I’m so honored to be participating in the 5th annual RD Blog week.  Today’s topic is: Community – Our community is often hard on each other, even going as far as accusing others of not having RA when they can physically do more than others. How can we educate our own community on RA and […]

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RD Blog week 2019: Day 3: Disability

I’m proud to participate in the 5th annual RD blog week.  Today is day three and the topic is: Disability – Discuss your feelings about our position within the disabled community with variable disability. How do you deal with limitations that are present some days and not others? Professionally, I’m a speech-language pathologist and I […]

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RA Blog week 2019: Day 2: Adjust

I am proud to be participating in the 5th annual RA blog week.  Day two’s topic: Adjust – How do you adjust to the affects of RD on your career, dreams, goals? I started with symptoms of RA at the age of 14.  I was told I had tendonitis.  At 19, the pain and swelling […]

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RA Blog Week 2019: Day 1: Dealing

I am so proud to participate in the 5th annual RA blog week.  Today’s topic is: Dealing – How do other diagnoses impact your RD and its treatment? When I was diagnosed with Graves disease my endocrinologist told me, “Once you get one autoimmune diagnosis, you are likely to get a few more.”  I didn’t […]

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RA goes to Hollywood…

I was watching the NBC show “New Amsterdam” last night.  It’s not the greatest show, but it is entertaining enough.  The show is based on the novel “Twelve Patients: Life and Death at Bellevue Hospital” by Eric Manheimer.  It follows the doctor in charge of the hospital who is “aiming to reform the neglected facility by […]

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A little bit of this, a little bit of that…

It’s been a while since I had time to blog.  So much to write about. Working full-time Patient Advocacy A milestone birthday So let’s start in September.  I had spent the majority of my summer with serious gastroenteritis.  I swear I have never experienced stomach issues like that in my life.  I went through test […]

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