RD Blogweek Day 5: Advice…

I’m proud to participate in the 5th annual RA Blog Week.  Today’s topic: Advice – What advice would you give to your newly diagnosed self after what you’ve learned living with RD?   Today has been a very difficult day.  Not because of my help, but because of my dog’s health.  The past three days […]

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RD Blog Week: Day4: Community

I’m so honored to be participating in the 5th annual RD Blog week.  Today’s topic is: Community – Our community is often hard on each other, even going as far as accusing others of not having RA when they can physically do more than others. How can we educate our own community on RA and […]

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RD Blog week 2019: Day 3: Disability

I’m proud to participate in the 5th annual RD blog week.  Today is day three and the topic is: Disability – Discuss your feelings about our position within the disabled community with variable disability. How do you deal with limitations that are present some days and not others? Professionally, I’m a speech-language pathologist and I […]

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RA Blog week 2019: Day 2: Adjust

I am proud to be participating in the 5th annual RA blog week.  Day two’s topic: Adjust – How do you adjust to the affects of RD on your career, dreams, goals? I started with symptoms of RA at the age of 14.  I was told I had tendonitis.  At 19, the pain and swelling […]

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RA Blog Week 2019: Day 1: Dealing

I am so proud to participate in the 5th annual RA blog week.  Today’s topic is: Dealing – How do other diagnoses impact your RD and its treatment? When I was diagnosed with Graves disease my endocrinologist told me, “Once you get one autoimmune diagnosis, you are likely to get a few more.”  I didn’t […]

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RA goes to Hollywood…

I was watching the NBC show “New Amsterdam” last night.  It’s not the greatest show, but it is entertaining enough.  The show is based on the novel “Twelve Patients: Life and Death at Bellevue Hospital” by Eric Manheimer.  It follows the doctor in charge of the hospital who is “aiming to reform the neglected facility by […]

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One more thing…

I’ve documented my rough summer.  The last episode has been stomach bug or food poisoning.  Honestly, I wasn’t sure which thing was making my stomach violently revolt.  I began vomiting on a Friday night.  By Monday, I felt fine again.  Was at an appointment on Thursday and began to feel the familiar pang of cramps. […]

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Dipping my toes in again…

I haven’t blogged in a while.  It’s been part writer’s block and part being overwhelmed by life lately.  I’ve had a lousy summer, in which so much stuff has gone wrong, that it is almost ridiculous at this point.  These are the events that I have been dealing with for the past 2 months. -I […]

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I have what???

****I’m updating the story: I started with symptoms on a Tuesday.  Wednesday spiked a fever.  By Saturday, my fever was 102 and I broke down to see a doctor.  I woke up early Sunday morning to take care of Georgia’s insulin and meds.  Ate some toast and went back to bed to rest.  Woke up […]

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Engage me…

Last week, I had the opportunity to participate in a patient panel at the “Virtual Clinical Trials In Drug Development Conference”, in Philadelphia.       I thought I was a good candidate to participate because in addition to being a patient,  I participated in IFAA‘s “A Community Team” (ACT) as a patient leader running […]

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