The fear of the unknown…

Life is scary for all of us right now. None of us have experience with this, so I’ve been following the recommendations of WHO (World Health Organization), the CDC (Centers of Disease Control), and the ACR (American College of Rheumatology). I did reach out to my personal rheumatologist and her advice was to get blood […]

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Rheumy Rounds™, part 2…

IFAA just put out the 2nd part of our first episode of Rheumy Rounds™, a breakout series from our ArthritisVoices360 podcast. In this episode we talk about the doctor/patient relationship. We also touched on what a patient expects to accomplish during visit as opposed to what a rheumatologist expect to accomplish during a visit. It’s […]

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Fa la la la la lazy…..

Christmas is in 4 days. Are my gifts wrapped? No. Am I packed? No. My decorations are minimal….and so is my Christmas spirit. My 2019 was extra crappy. Here is a little recap…. January: I started the year with a broken foot/non-weight bearing. On January 2, my cat tripped me and I ended up tearing […]

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A little bit of this, a little bit of that…

It’s been a while since I had time to blog.  So much to write about. Working full-time Patient Advocacy A milestone birthday So let’s start in September.  I had spent the majority of my summer with serious gastroenteritis.  I swear I have never experienced stomach issues like that in my life.  I went through test […]

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In the news…

A few months ago, I was contacted by a writer looking to do a story about a patient for the American College of Rheumatology‘s online magazine, “The Rheumatologist“. She wanted to talk to someone who had attending the ACR’s annual Advocates for Arthritis event in Washington DC.  I was honored someone recommended me for the […]

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