Rheumy Rounds™…

I recently started a foray into podcasting with my IFAA cofounder Tiffany. She is the brains behind the project, in which patients co-host a podcast to discuss issues impacting patients in the autoimmune/autoinflammatory arthritis community. Our latest series is called “Rheumy Rounds”. Personally, I think it is ground breaking. How many of us (patients) have […]

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Dad

My earliest memory of my dad is squirting the hose at my mom with his encouragement. I remember my mom screaming in shock and my dad and I laughing hysterically at her reaction. My last memory of my dad, is his unresponsive face covered in an oxygen mask as I was crying “I love you” […]

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please

My 84 year-old father has Parkinson’s and degenerative arthritis in addition to heart disease, diabetes, and other medical issues. He is a fall risk and fell quite a bit. I was working with my parents on getting help, but could only do so much without their permission. They are fiercely independent. Over the summer, I […]

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Wish me luck…

Living with chronic illness is tough. Living with chronic illness when your elderly parents are struggling medically is also tough. Toss in a pandemic and the stress and anxiety are at an all time high. Then my dad fell and broke his hip and ended up in a rehab hospital. I was lucky enough to […]

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LAME JOINTS and social expectations….

Life has been stressful. I’m dealing with not only my job (online), flares, and a serious issue with my elderly parents. Stress is intense and it is taking a toll on me physically and emotionally. It’s always a fine balance in these situations. Trying to self-care while caring for others. Trying to stay focused on […]

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Warning: Capacity depleted…

We all have those “Aha” moments. The moment when you learn about something that gives you clarity that you may or may not have known you were seeking. I had this kind of moment tonight and it is a moment that I truly needed. Let me explain, I’m miserable. Starting a virtual school year after […]

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Keep on Keeping on….

When the pandemic struck, my job became virtual. I started noticing how much better my body felt. Swelling was minimal, pain was present but minimal. I was walking 3 miles a day and feeling on top of the world. I wondered if my multiple jobs and long hours were draining my health. I work in […]

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Stop telling me I have a choice….

On social media I am a patient advocate and blogger.  In my private/professional life, I am a speech-language pathologist and work in the public school system.  I try to keep my two lives very separate.  I speak of my career in generalities in my blog.  I’m lucky that my health issues don’t stop me from being able to work […]

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Expect the unexpected

It’s been a while since I have written anything other than a text message and I am feeling rusty. The break was not intentional. I was recently diagnosed with vestibular migraines. What is a vestibular migraine? Basically, it’s vertigo. Fun right? Spinning, falling, and nausea. Good times. I’m still waiting to see a neurologist. I’m […]

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Crash…

Since the Coronavirus Quarantine, my body has been on a high. I’ve been feeling good. Working from home has greatly improved my joint pain. It’s something my rheumatologist has been asking me to do for a while….work less. Although, I’m not working less, per se, I am working with my legs up, less walking, and […]

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Lost and found…

I took a break from blogging after losing my beloved Georgia Grace. I have to laugh because I do work hard on my blog, but anytime I write about my pets, I get the most views. I agree….my pets are pretty special. Losing Georgia was leading me down a path to depression. The worst part […]

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