Rheumy Rounds™…

I recently started a foray into podcasting with my IFAA cofounder Tiffany. She is the brains behind the project, in which patients co-host a podcast to discuss issues impacting patients in the autoimmune/autoinflammatory arthritis community. Our latest series is called “Rheumy Rounds”. Personally, I think it is ground breaking. How many of us (patients) have […]

Read More

LAME JOINTS and social expectations….

Life has been stressful. I’m dealing with not only my job (online), flares, and a serious issue with my elderly parents. Stress is intense and it is taking a toll on me physically and emotionally. It’s always a fine balance in these situations. Trying to self-care while caring for others. Trying to stay focused on […]

Read More

Warning: Capacity depleted…

We all have those “Aha” moments. The moment when you learn about something that gives you clarity that you may or may not have known you were seeking. I had this kind of moment tonight and it is a moment that I truly needed. Let me explain, I’m miserable. Starting a virtual school year after […]

Read More

Keep on Keeping on….

When the pandemic struck, my job became virtual. I started noticing how much better my body felt. Swelling was minimal, pain was present but minimal. I was walking 3 miles a day and feeling on top of the world. I wondered if my multiple jobs and long hours were draining my health. I work in […]

Read More

Stop telling me I have a choice….

On social media I am a patient advocate and blogger.  In my private/professional life, I am a speech-language pathologist and work in the public school system.  I try to keep my two lives very separate.  I speak of my career in generalities in my blog.  I’m lucky that my health issues don’t stop me from being able to work […]

Read More

Expect the unexpected

It’s been a while since I have written anything other than a text message and I am feeling rusty. The break was not intentional. I was recently diagnosed with vestibular migraines. What is a vestibular migraine? Basically, it’s vertigo. Fun right? Spinning, falling, and nausea. Good times. I’m still waiting to see a neurologist. I’m […]

Read More

Crash…

Since the Coronavirus Quarantine, my body has been on a high. I’ve been feeling good. Working from home has greatly improved my joint pain. It’s something my rheumatologist has been asking me to do for a while….work less. Although, I’m not working less, per se, I am working with my legs up, less walking, and […]

Read More

Lost and found…

I took a break from blogging after losing my beloved Georgia Grace. I have to laugh because I do work hard on my blog, but anytime I write about my pets, I get the most views. I agree….my pets are pretty special. Losing Georgia was leading me down a path to depression. The worst part […]

Read More

Each day was a gift…

My life changed in 2009. I brought the most adorable, beautiful, and feisty puppy home. Little did I know that 4 lbs. of cuteness could hold so much attitude. I’ve documented Georgia’s life so much over the years. Her chronic illnesses multiplied until we were dealing with 11 chronic issues by end. Yes, I said […]

Read More

The fear of the unknown…

Life is scary for all of us right now. None of us have experience with this, so I’ve been following the recommendations of WHO (World Health Organization), the CDC (Centers of Disease Control), and the ACR (American College of Rheumatology). I did reach out to my personal rheumatologist and her advice was to get blood […]

Read More

Unexpected goodness

This has been a crazy week. Watching the news and all the information regarding COVID-19. Of course the first known person in Pennsylvania happened to live about 4 miles from me. I heard as I was pulling into a gas station to fill up my tank. I found napkins before picking up the nozzle and […]

Read More