Rheumy Rounds™…

I recently started a foray into podcasting with my IFAA cofounder Tiffany. She is the brains behind the project, in which patients co-host a podcast to discuss issues impacting patients in the autoimmune/autoinflammatory arthritis community. Our latest series is called “Rheumy Rounds”. Personally, I think it is ground breaking. How many of us (patients) have […]

Read More

22 reasons why…

Today was a tough day. It was a typical work day with all the typical hassles that occur, but I felt like I counted down each and every moment until 2:25 pm. You see at 2:25 pm, I was scheduled for my first COVID-19 vaccine. My journey to this moment has been painful for many […]

Read More

Overwhelmed…

I lost my dad after a battle with COVID-19 on November 10. Twenty-two days later, my Uncle also passed after being diagnosed with COVID a day earlier. Both were senior citizens. Both had pre-existing conditions. Neither one of them deserved to die the way that they did. Alone without the comfort of loved ones by […]

Read More

‘Twas the night before a snowstorm

I wrote this in 2018. We didn’t have any snow in 2019, so I thought it would be fun to share this poem again. My blog has been pretty sad lately, so I hope this little poem makes you laugh. Be well my friends!

Read More

They deserved better

Last time I posted about my dad losing his fight with COVID. Since then, I lost another family member. My uncle called the day after my dad died to tell us that he fell. My uncle had a myriad of medical issues, with one being severed COPD. My family (parents, cousins, etc.) followed guidelines and […]

Read More

Dad

My earliest memory of my dad is squirting the hose at my mom with his encouragement. I remember my mom screaming in shock and my dad and I laughing hysterically at her reaction. My last memory of my dad, is his unresponsive face covered in an oxygen mask as I was crying “I love you” […]

Read More

please

My 84 year-old father has Parkinson’s and degenerative arthritis in addition to heart disease, diabetes, and other medical issues. He is a fall risk and fell quite a bit. I was working with my parents on getting help, but could only do so much without their permission. They are fiercely independent. Over the summer, I […]

Read More

Wish me luck…

Living with chronic illness is tough. Living with chronic illness when your elderly parents are struggling medically is also tough. Toss in a pandemic and the stress and anxiety are at an all time high. Then my dad fell and broke his hip and ended up in a rehab hospital. I was lucky enough to […]

Read More

LAME JOINTS and social expectations….

Life has been stressful. I’m dealing with not only my job (online), flares, and a serious issue with my elderly parents. Stress is intense and it is taking a toll on me physically and emotionally. It’s always a fine balance in these situations. Trying to self-care while caring for others. Trying to stay focused on […]

Read More

Warning: Capacity depleted…

We all have those “Aha” moments. The moment when you learn about something that gives you clarity that you may or may not have known you were seeking. I had this kind of moment tonight and it is a moment that I truly needed. Let me explain, I’m miserable. Starting a virtual school year after […]

Read More

Keep on Keeping on….

When the pandemic struck, my job became virtual. I started noticing how much better my body felt. Swelling was minimal, pain was present but minimal. I was walking 3 miles a day and feeling on top of the world. I wondered if my multiple jobs and long hours were draining my health. I work in […]

Read More