One more thing…

I’ve documented my rough summer.  The last episode has been stomach bug or food poisoning.  Honestly, I wasn’t sure which thing was making my stomach violently revolt.  I began vomiting on a Friday night.  By Monday, I felt fine again.  Was at an appointment on Thursday and began to feel the familiar pang of cramps. […]

Read More

Dipping my toes in again…

I haven’t blogged in a while.  It’s been part writer’s block and part being overwhelmed by life lately.  I’ve had a lousy summer, in which so much stuff has gone wrong, that it is almost ridiculous at this point.  These are the events that I have been dealing with for the past 2 months. -I […]

Read More

A senseless goodbye…

I lost someone I love to drug addiction.  It started with an addiction to prescription pain meds.  He injured his ankle years ago and struggled with the pain.  I figured out he was an addict after I had surgery to repair my broken ankle.  He asked me what medication I was given and I told […]

Read More

I have what???

****I’m updating the story: I started with symptoms on a Tuesday.  Wednesday spiked a fever.  By Saturday, my fever was 102 and I broke down to see a doctor.  I woke up early Sunday morning to take care of Georgia’s insulin and meds.  Ate some toast and went back to bed to rest.  Woke up […]

Read More

Inflammation motivation…

I recently read an article called:  “Chronic inflammation removes motivation by reducing dopamine in the brain.”  Reading the article was one of those “OMG this is me!!!” moments.  For the past few years, I just could not figure out where my motivation went.  Granted, I’m exhausted and in pain….but I have ZERO motivation for things […]

Read More

With a hope and a flare….

This past week, I’ve been dealing with one of the worst flare ups of my disease in years.  I say the word “disease” because honestly, no one seems to know for sure what I have.  Sometimes I’m told I have rheumatoid arthritis.  Other times, I’m told I have psoriatic arthritis or spondyloarthopathy.  All I know….is […]

Read More

Engage me…

Last week, I had the opportunity to participate in a patient panel at the “Virtual Clinical Trials In Drug Development Conference”, in Philadelphia.       I thought I was a good candidate to participate because in addition to being a patient,  I participated in IFAA‘s “A Community Team” (ACT) as a patient leader running […]

Read More