I hope you laugh…

I spend time with a lot of kids.  In my work and in my life, I am surrounded by kids a lot. The other day, a kid came up to me and our conversation went something like this: Kid: I feel so bad for you. Me: Why? Kid: I read your book. Me: (thinking kid […]

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RA Blog Week 2018: Day 5 (Another Wildcard): Politics

Honored to be a part of this 4th annual RA Blog Week 2018.  Thanks to Rick Phillips for organizing and inviting me to participate.  Today’s topic is not one I was able to respond to, so I decided to do another wild card.  Here is today’s prompt: Politics – Health is always a hot item for […]

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RA Blog Week 2018: Day 4, Research…

I’m proud to be a part of the 4th annual RA blog week.  Today’s prompt:  Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced to using research about Rheumatic Disease. […]

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RA Blog week 2018: #3 Mindfulness…

I’m honored to be a part of the 4th annual RA blog week.  Today’s prompt is: Mindfulness – What does mindfulness mean to you and how can it help as we live with our autoimmune condition? About 10 years ago, I learned about a Mindfulness course offered through the Myrna Brind Center at Thomas Jefferson Hospital […]

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RA Blog Week 2018: The good, the bad, and the ugly…

I am proud to participate in the 4th annual RA Blog Week.  Thanks to Rick Phillips for organizing this event every year. Day 1 Prompt: The Medicine – Patients with autoimmune disease often are not treated well by Doctors and Pharmacists when we ask for or receive prescription pain medicine.  What has been your experience?   Share […]

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As the list goes on…

In addition to my autoimmune arthritis and other chronic illnesses, I’ve written about my skin issues. Right before my diagnosis of Sjogren’s syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis).  I basically get these little circles on my skin. They get hard and sometimes flake.  Over time, they […]

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So long summer…

I love summer.  I didn’t have the best summer, but regardless, I always hate seeing it come to an end.  Today is also Labor Day.  A day in which we, in the United States, honoring contribution and achievements of American workers.  I am still able to work with my chronic illnesses.  It’s far from easy. […]

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