RD Blog Week: Day4: Community

I'm so honored to be participating in the 5th annual RD Blog week.  Today's topic is: Community – Our community is often hard on each other, even going as far as accusing others of not having RA when they can physically do more than others. How can we educate our own community on RA and... Continue Reading →

RD Blog week 2019: Day 3: Disability

I'm proud to participate in the 5th annual RD blog week.  Today is day three and the topic is: Disability – Discuss your feelings about our position within the disabled community with variable disability. How do you deal with limitations that are present some days and not others? Professionally, I'm a speech-language pathologist and I... Continue Reading →

RA Blog Week 2019: Day 1: Dealing

I am so proud to participate in the 5th annual RA blog week.  Today's topic is: Dealing – How do other diagnoses impact your RD and its treatment? When I was diagnosed with Graves disease my endocrinologist told me, "Once you get one autoimmune diagnosis, you are likely to get a few more."  I didn't... Continue Reading →

RA goes to Hollywood…

I was watching the NBC show "New Amsterdam" last night.  It's not the greatest show, but it is entertaining enough.  The show is based on the novel "Twelve Patients: Life and Death at Bellevue Hospital" by Eric Manheimer.  It follows the doctor in charge of the hospital who is "aiming to reform the neglected facility by... Continue Reading →

One more thing…

I've documented my rough summer.  The last episode has been stomach bug or food poisoning.  Honestly, I wasn't sure which thing was making my stomach violently revolt.  I began vomiting on a Friday night.  By Monday, I felt fine again.  Was at an appointment on Thursday and began to feel the familiar pang of cramps.... Continue Reading →

Dipping my toes in again…

I haven't blogged in a while.  It's been part writer's block and part being overwhelmed by life lately.  I've had a lousy summer, in which so much stuff has gone wrong, that it is almost ridiculous at this point.  These are the events that I have been dealing with for the past 2 months. -I... Continue Reading →

I have what???

****I'm updating the story: I started with symptoms on a Tuesday.  Wednesday spiked a fever.  By Saturday, my fever was 102 and I broke down to see a doctor.  I woke up early Sunday morning to take care of Georgia's insulin and meds.  Ate some toast and went back to bed to rest.  Woke up... Continue Reading →

Inflammation motivation…

I recently read an article called:  "Chronic inflammation removes motivation by reducing dopamine in the brain."  Reading the article was one of those "OMG this is me!!!" moments.  For the past few years, I just could not figure out where my motivation went.  Granted, I'm exhausted and in pain....but I have ZERO motivation for things... Continue Reading →

With a hope and a flare….

This past week, I've been dealing with one of the worst flare ups of my disease in years.  I say the word "disease" because honestly, no one seems to know for sure what I have.  Sometimes I'm told I have rheumatoid arthritis.  Other times, I'm told I have psoriatic arthritis or spondyloarthopathy.  All I know....is... Continue Reading →

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