A few days ago, the world was sad to learn that Chris Cornell passed away.  My mother was not familiar with Chris and asked me who he was.  While telling her, I kept saying he had a "powerful voice".  I remember seeing him with Soundgarden in 1992.  I knew some of their music, but when... Continue Reading →

  I've been in a brain freeze for the past few days.  The recent passing of the AHCA bill in Congress has left me reeling for many reasons.  When I expressed concerns, a friend asked why I was worried because I don't use Obamacare as my insurance.  It made me realize that people have no... Continue Reading →

I've finally beaten my flares!  Things should be back to normal, right? Well in the chronic life, it's seldom normal.  At a recent rheumatologist appointment, I expressed that my spine and hip were killing me.  My doctor gave me a script for physical therapy.  She felt I have tendonitis in my hip.  Turns out my... Continue Reading →

A few months ago, my friend Jodi Seidler  (2Hip Productions) contacted me and asked if I would be interested in sitting on a patient panel focusing on adherence with her at an eXL event in Philadelphia. The amazing MarlaJan DeFusco (Luck Fupas) would be one of the keynote speakers, so I was SUPER excited to join!  I have previously... Continue Reading →

The President of the United States  was quoted as saying, "Nobody knew healthcare could be so complicated".  Nobody knew.  Nobody knew?  NOBODY KNEW??!!!  I think my brain may have ruptured a tad bit with that statement. I know a lot of people who knew healthcare was complicated.  They know how complicated it is because they live... Continue Reading →

I saw a news story that Ted Cruz (Senator from Texas) met a woman living with Multiple Sclerosis.  In his attempt relate to her, he congratulated her on her struggle living with MS.  Congratulated. Her. For. Living. With. MS.  Now don't get me wrong, I am pretty sure he meant he admired her strength for... Continue Reading →

My fibromyalgia has been kicking my butt lately.  Lots of achiness, pain and overwhelming fatigue. The other evening, I was lying on the sofa feeling lousy when I got a text.  It was my neighbor asking me to come outside to see her new car.  I went to stand up and was hit by a wave of "OUCH".... Continue Reading →

I was excited when CreakyJoints asked me to write about my relationship with my dog.  I thought it would be easy to reflect on our life together, but it wasn’t.  My dog and I have a complicated relationship that was harder to explain than I expected  Not only is she my constant companion and fur... Continue Reading →

I have always avoided politics on my blog because, honestly, I just don't feel the need to debate my ideals.  I hold no contempt for the views of others that don't match my own.  I may not understand the views of others, but I respect their choice.  Today, I'm going to talk about a politician... Continue Reading →

I always write about myself as a person living with Chronic Illness, a #spoonie,  but today I am going in another direction. My beautiful dog, Georgia Grace is a Cavalier King Charles Spaniel also lives with debilitating chronic illnesses. This breed is very delicate from years of puppy mills breeding unhealthy dogs together. Georgia suffers... Continue Reading →