Hobbies – Hobbies are healthy or maybe they are not? What is your hobby and how does it help you with your autoimmune conditions? If you do not have a hobby imagine a great hobby for a person dealing with RA. Honestly, I used to have more hobbies prior to getting diagnosed. I used... Continue Reading →
I’m proud to be a part of RA Blog Week 2017. I’m just returning from three days in Washington DC where I visited members of Congress and Senate to discuss the needs of patients living with Rheumatic diseases. Needless to say, I’m 100% exhausted today. Today’s prompt relates to partners:
Partners – Where would we be without our partners? They are often not just partners but caregivers. Tell your partners story. And if you do not have a partner what will your ideal partner be like, or do you even want one?
I currently don’t have a partner, but I wrote this love letter to my dog Georgia a few months ago. It was originally found on Creaky Joints. I’m being somewhat lazy because I had to get cortisone injections in both of my elbows and am switching biologic drugs (for the 7th time). Because of this, I’m going to reblog a story about my Georgia Grace. At this point, she is my partner in crime, my BFF, and my best friend. We share the chronic illness journey and although I hate that we both are on this journey, I’m so grateful to have her in my life.
I was excited when CreakyJoints asked me to write about my relationship with my dog. I thought it would be easy to reflect on our life together, but it wasn’t. My dog and I have a complicated relationship that was harder to explain than I expected Not only is she my constant companion and fur baby, Georgia is also a fellow spoonie.
I’ve been living with multiple chronic illnesses for over 20 years. My journey into the world of chronic illness life started with Grave’s disease and DSAP (a skin disease) then moved into more painful illnesses of Fibromyalgia and Polyarticular Spondlyoarthropathy. Through the years I’ve had some relief from various medications, but overall, my pain has been my constant companion since my early 30’s. I loved animals and always had dogs as a child, but I hesitated to get one as an adult because of my pain and…
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Tips and tricks – What are the ways you have learned to work around the physical difficulties and limitations of your autoimmune condition. I remember being at one of those home kitchen tools parties years ago and I friend said something about not wanting to buy "gadgets" because that are just junk you don't... Continue Reading →
I am proud to be participating in the third annual RA blog week. Thanks to Rick @ RADiabetes for inviting me to participate. I look forward to catching up on everyone's blogs soon. I am currently attending the American College of Rheumatology's annual Advocates for Arthritis in Washington DC. I will do my best to... Continue Reading →
I wanted to say "THANK YOU" to Jimmy Kimmel for speaking out against the Graham-Cassidy bill that is attempting to pass in the Senate in the next few days. Jimmy commented on the fact that people will think he is "politicizing my son's health problems" but he unapologetically states he is doing just that. He... Continue Reading →
It’s the one year anniversary of losing my beloved Lola. She is one of the inspirations for my name Lolabellaquin. Sadly, only Bella remains and she is not long for this world. Sharing as a way to honor one of the greatest loves of my life. Life is simply better with a pet. I’m certain.
8/13/16: My final update. My queen has passed…..
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| “You might be gone from my sight, but you are never gone from my heart.” |
My phone rang at 2:00 am. A vet at the emergency hospital told me that Lola “arrested and passed”. I’m surprised none of you heard my scream as my heart broke in two. I asked if I could go and hold her. I raced to the hospital with tears streaming down my face. When I walked in, they told me that Lola stopped breathing for 2 minutes but had just started again. Her eyes were open and she was drooling. Then she heard me and fighter that she is, sat up for me. It was partly my Lola and partly a zombie Lola. Her poor little body was struggling to breathe. When they initially told me she died, I was heart broken that she did so alone…
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This is an updated version of my post regarding insurance "I preexist therefore I am..." and a longer version of my "The Mighty" piece : How AHCA, Repeal of ACA Could Affect Me With Preexisting Conditions. I am reeling over the Senate vote to repeal or replace ObamaCare today. I firmly believe the law needed improvement,... Continue Reading →
***This is an updated version of I preexist therefore I am… *** I’ve been in a brain freeze for the past few days. The recent passing of the AHCA (American Health Care Act) in the House and the Senate’s Better Care Reconciliation Act of 2017 (BCRA) have left me reeling for many reasons. When I expressed... Continue Reading →
I'm going out on a limb. I may be controversial with my stance, but I am taking it. I see all the programs out to help people with opioid addiction. I've also seen memes asking why Narcan (a drug that reverses opiod overdoses) is free while chemo isn't free for cancer patients. Now drug addiction... Continue Reading →
***Update. I received a 4th nomination. Thank you again!! A big thank you to whoever nominated me, & As my joints turn, for THREE Wego Health Awards. I am beyond thankful and humbled. It means so much that more than my mom an dad read my blog. WEGO Health has lots of Health Advocates... Continue Reading →
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