Fa la la la la lazy…..

Christmas is in 4 days. Are my gifts wrapped? No. Am I packed? No. My decorations are minimal....and so is my Christmas spirit. My 2019 was extra crappy. Here is a little recap.... January: I started the year with a broken foot/non-weight bearing. On January 2, my cat tripped me and I ended up tearing... Continue Reading →

With a hope and a flare….

This past week, I've been dealing with one of the worst flare ups of my disease in years.  I say the word "disease" because honestly, no one seems to know for sure what I have.  Sometimes I'm told I have rheumatoid arthritis.  Other times, I'm told I have psoriatic arthritis or spondyloarthopathy.  All I know....is... Continue Reading →

Sorry for smiling….

Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud.  I wouldn't say this is surprising.  People have been spying on the disabled for years.  Growing up, I always heard how people "faked disability" to milk the system.  My family... Continue Reading →

Who knows best…

Insurance is a blessing and a curse in my life.  I'm grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I've written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again.  Why?  Because I had... Continue Reading →

Four more weeks…

I had my follow up for my broken foot (AKA 5th metatarsal fracture) today.  I've been trying my best to not bear weight on my foot since 11/1/2018.  The past 46 days have been difficult.  I've tried my best to not walk.  I admit, it's so hard in my stair-filled house, so there are times when... Continue Reading →

In the news…

A few months ago, I was contacted by a writer looking to do a story about a patient for the American College of Rheumatology's online magazine, "The Rheumatologist". She wanted to talk to someone who had attending the ACR's annual Advocates for Arthritis event in Washington DC.  I was honored someone recommended me for the... Continue Reading →

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