A few months ago, my friend Jodi Seidler (2Hip Productions) contacted me and asked if I would be interested in sitting on a patient panel focusing on adherence with her at an eXL event in Philadelphia. The amazing MarlaJan DeFusco (Luck Fupas) would be one of the keynote speakers, so I was SUPER excited to join! I have previously... Continue Reading →
It’s so complicated…
The President of the United States was quoted as saying, "Nobody knew healthcare could be so complicated". Nobody knew. Nobody knew? NOBODY KNEW??!!! I think my brain may have ruptured a tad bit with that statement. I know a lot of people who knew healthcare was complicated. They know how complicated it is because they live... Continue Reading →
Congratulations you’re sick…
I saw a news story that Ted Cruz (Senator from Texas) met a woman living with Multiple Sclerosis. In his attempt relate to her, he congratulated her on her struggle living with MS. Congratulated. Her. For. Living. With. MS. Now don't get me wrong, I am pretty sure he meant he admired her strength for... Continue Reading →
Flu or not the flu, that is the question…
My fibromyalgia has been kicking my butt lately. Lots of achiness, pain and overwhelming fatigue. The other evening, I was lying on the sofa feeling lousy when I got a text. It was my neighbor asking me to come outside to see her new car. I went to stand up and was hit by a wave of "OUCH".... Continue Reading →
My dog is a “spoonie” too (version 2)
I was excited when CreakyJoints asked me to write about my relationship with my dog. I thought it would be easy to reflect on our life together, but it wasn’t. My dog and I have a complicated relationship that was harder to explain than I expected Not only is she my constant companion and fur... Continue Reading →
A burned down house…I don’t think so…
I have always avoided politics on my blog because, honestly, I just don't feel the need to debate my ideals. I hold no contempt for the views of others that don't match my own. I may not understand the views of others, but I respect their choice. Today, I'm going to talk about a politician... Continue Reading →
My dog is a #spoonie, too.
I always write about myself as a person living with Chronic Illness, a #spoonie, but today I am going in another direction. My beautiful dog, Georgia Grace is a Cavalier King Charles Spaniel also lives with debilitating chronic illnesses. This breed is very delicate from years of puppy mills breeding unhealthy dogs together. Georgia suffers... Continue Reading →
Goodbye to you…
2016 has not been my best year. Just a few highlights: Dad had a stroke (he is thankfully doing well now) I was in a car accident in which my car was totaled and my neck was injured (lucky I wasn't more seriously injured, but it really rocked my world for a while) I had... Continue Reading →
Wishing you the best…
Just a quick note to thank you all for your support this year. Wishing you a happy holiday season. May you be surrounded by those you love. Have a happy and healthy 2017! -Kelly
My chronic life…
IFAA, the non-profit I cofounded in 2013 recently shared this meme on their Facebook page. Of course I have thought these things, but to see it in print, makes quite an impact. This meme is my life. Today, I was unable to open a drink because I wrote Christmas cards last night. I didn't... Continue Reading →