Slide and twist….

I used to joke that if I ever woke up without pain, I’d think I was dead. I should clarify that I often wake up without pain, but as soon as I attempt to move… YOWZA This past summer, my diagnosis changed from rheumatoid arthritis to non-radiographic ankylosing spondylitis. My back has been killing me […]

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988

tWitch’s death has spread around the globe and rocked many. He shone a light on your screens via television and social media. His life seemed golden and perfect with a beautiful family and successful career. Through this all, I’ve seen some posts where people claimed he was “selfish” and he had “so many options”. These […]

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Have yourself a Merry Chronic Christmas…

The holidays can be both enjoyable and stressful when you are dealing with a chronic illness. I’ve learned that boundaries are important. I’m not always the best at enforcing my boundaries, but after being sick for the past four months, I need to be extra cautious with my health. 🎄You may want to do everything […]

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Stop asking me to dance…

I’ve lived with Chronic illness for over 20 years. During that time, I admit, I haven’t always been good at communicating what I needed from friends and family. Over the years, I’ve learned how to set boundaries and ask for what I need. The issue is, I’ve become more discerning of whom I choose to […]

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So I did a thing….or two…

I haven’t blogged in a while. Recovering from pneumonia was difficult, then I caught COVID….. After 2 years and 8 months of avoiding the dreaded virus, I tested positive. I had a mild case. Bad cold without a fever. Due to my immunocompromised status, my doctor prescribed Paxlovid, the antiviral medication. Although my COVID symptoms […]

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Cross your fingers for me…

I started my new biosimilar infusions to treat my autoimmune arthritis in May 2022. Everyone asked me, “Is it working?” Honestly, it’s hard to tell. I was cautiously optimistic. Slowly, I noticed I could walk my dog for longer periods, walk upstairs to use the bathroom at the end of the day (instead of crawling […]

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One step at a time…

It’s been a hot minute since I’ve posted a blog. There are 15 blogs in my drafts that I just couldn’t finish. I feel like I lost my voice for a bit. I’ve lived in pain for over 20 years. This past year; however, I feel like my disease is out of control. Medication barely […]

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I’m angry

I am very angry and have been for a very long time. I’m angry that in my dogs final days I spent more than 75% of the time sitting in the car waiting for her instead of being able to hold and comfort her due to COVId-19. I’m grateful I was able to hold her […]

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April showers…..

I was determined to write about something that didn’t have to do with depression. I couldn’t do it. I lost so much in 2020, that somedays it feels unimaginable that I will be able to pull myself out. Ironically, social media has “memories” that pop up on your feed that highlight things that happened in […]

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How can I assist you?

My health has been a roller coaster lately. This past week my disease is basically out of control. I had to break out my cane because walking and balance were an issue. I woke up Friday morning feeling exhausted, but I got out of bed and forced myself to drive to work. I lasted 1.5 […]

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