As My Joints Turn: my autoimmune soap opera
Autoimmune Arthritis isn't the end of the world, it's just another way of living in the world.
Pacing has always been difficult for me. For years, my preferred method of energy management was simple: throw every ounce of energy I had into accomplishing something and then collapse when it was finished. Was this pacing? No. Was it effective? Mostly no. But I got things done. Then I paid the price with a... Continue Reading →
This time of year, I would normally be fretting over all the things I didn’t accomplish over the summer. August always arrived much too quickly, school started much too soon, and I’d wonder how an entire summer disappeared while half my to-do list remained untouched. This year is different. There’s no back-to-school countdown hanging over... Continue Reading →
Living with chronic illness for almost 30 years gives one a thick skin. I've met so many people who love to give me free advice. For the most part, it's all good intended suggestions, but I often feel stumped on how to respond. Today someone said, "My friend says those infusions you take are bad,... Continue Reading →
In today's episode of “Whatever Doesn’t Kill You Makes You Stronger”: Insurance + PBM vs. Me I’ve learned that a lot of people don’t actually know what a PBM is. It stands for Pharmacy Benefits Manager—the middleman between insurance companies and patients that’s supposed to keep drug prices low (spoiler: they don’t) and make private insurance more affordable. It’s... Continue Reading →