As My Joints Turn: my autoimmune soap opera
Autoimmune Arthritis isn't the end of the world, it's just another way of living in the world.
Pacing has always been difficult for me. For years, my preferred method of energy management was simple: throw every ounce of energy I had into accomplishing something and then collapse when it was finished. Was this pacing? No. Was it effective? Mostly no. But I got things done. Then I paid the price with a... Continue Reading →
For years, my autoimmune/inflammatory arthritis disease impacted my joints. I lived with pain from inflammed joints life altering exhaustion, but I was able to push through wth the help of medications, therpies, and force of will. Then my disease becme systemic. A CT scan showed my liver, intestines, lungs, colon, and heart lining all showed... Continue Reading →
This time of year, I would normally be fretting over all the things I didn’t accomplish over the summer. August always arrived much too quickly, school started much too soon, and I’d wonder how an entire summer disappeared while half my to-do list remained untouched. This year is different. There’s no back-to-school countdown hanging over... Continue Reading →
My weight and I have been a complicated relationship my entire life. I was never the skinny girl. I was the girl with curves—or as my aunt liked to say, “a brick shithouse.” To this day, I’m still not entirely sure if that was a compliment or a construction assessment. I had curves. Big boobs, small waist,... Continue Reading →
Every morning I wake up and think, today is going to be the day I feel better.Today will be the day I can function like a normal human being.Today is the day I will feel great. Then I get out of bed and realize the pain, fatigue, and general malaise are still there. It’s hard not to feel... Continue Reading →