I am proud to be participating in the 5th annual RA blog week. Day two's topic: Adjust – How do you adjust to the affects of RD on your career, dreams, goals? I started with symptoms of RA at the age of 14. I was told I had tendonitis. At 19, the pain and swelling... Continue Reading →
RA Blog Week 2019: Day 1: Dealing
I am so proud to participate in the 5th annual RA blog week. Today's topic is: Dealing – How do other diagnoses impact your RD and its treatment? When I was diagnosed with Graves disease my endocrinologist told me, "Once you get one autoimmune diagnosis, you are likely to get a few more." I didn't... Continue Reading →
RA goes to Hollywood…
I was watching the NBC show "New Amsterdam" last night. It's not the greatest show, but it is entertaining enough. The show is based on the novel "Twelve Patients: Life and Death at Bellevue Hospital" by Eric Manheimer. It follows the doctor in charge of the hospital who is "aiming to reform the neglected facility by... Continue Reading →
One more thing…
I've documented my rough summer. The last episode has been stomach bug or food poisoning. Honestly, I wasn't sure which thing was making my stomach violently revolt. I began vomiting on a Friday night. By Monday, I felt fine again. Was at an appointment on Thursday and began to feel the familiar pang of cramps.... Continue Reading →
Dipping my toes in again…
I haven't blogged in a while. It's been part writer's block and part being overwhelmed by life lately. I've had a lousy summer, in which so much stuff has gone wrong, that it is almost ridiculous at this point. These are the events that I have been dealing with for the past 2 months. -I... Continue Reading →
I have what???
****I'm updating the story: I started with symptoms on a Tuesday. Wednesday spiked a fever. By Saturday, my fever was 102 and I broke down to see a doctor. I woke up early Sunday morning to take care of Georgia's insulin and meds. Ate some toast and went back to bed to rest. Woke up... Continue Reading →
Engage me…
Last week, I had the opportunity to participate in a patient panel at the "Virtual Clinical Trials In Drug Development Conference", in Philadelphia. I thought I was a good candidate to participate because in addition to being a patient, I participated in IFAA's "A Community Team" (ACT) as a patient leader running... Continue Reading →
Sorry for smiling….
Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud. I wouldn't say this is surprising. People have been spying on the disabled for years. Growing up, I always heard how people "faked disability" to milk the system. My family... Continue Reading →
Justify yourself…
The symptoms... The past few months I have been really down. Emotionally, financially, and physically. My dog's medical bills are weighing on me. I feel constant stress over it. I picked up another job so now I have three 10-12 hour work days to pay for her care. I'm exhausted. I justified that exhaustion to... Continue Reading →
Who knows best…
Insurance is a blessing and a curse in my life. I'm grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I've written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again. Why? Because I had... Continue Reading →