RA Blog week 2019: Day 2: Adjust

I am proud to be participating in the 5th annual RA blog week.  Day two’s topic: Adjust – How do you adjust to the affects of RD on your career, dreams, goals? I started with symptoms of RA at the age of 14.  I was told I had tendonitis.  At 19, the pain and swelling […]

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RA Blog Week 2019: Day 1: Dealing

I am so proud to participate in the 5th annual RA blog week.  Today’s topic is: Dealing – How do other diagnoses impact your RD and its treatment? When I was diagnosed with Graves disease my endocrinologist told me, “Once you get one autoimmune diagnosis, you are likely to get a few more.”  I didn’t […]

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RA goes to Hollywood…

I was watching the NBC show “New Amsterdam” last night.  It’s not the greatest show, but it is entertaining enough.  The show is based on the novel “Twelve Patients: Life and Death at Bellevue Hospital” by Eric Manheimer.  It follows the doctor in charge of the hospital who is “aiming to reform the neglected facility by […]

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One more thing…

I’ve documented my rough summer.  The last episode has been stomach bug or food poisoning.  Honestly, I wasn’t sure which thing was making my stomach violently revolt.  I began vomiting on a Friday night.  By Monday, I felt fine again.  Was at an appointment on Thursday and began to feel the familiar pang of cramps. […]

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Dipping my toes in again…

I haven’t blogged in a while.  It’s been part writer’s block and part being overwhelmed by life lately.  I’ve had a lousy summer, in which so much stuff has gone wrong, that it is almost ridiculous at this point.  These are the events that I have been dealing with for the past 2 months. -I […]

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I have what???

****I’m updating the story: I started with symptoms on a Tuesday.  Wednesday spiked a fever.  By Saturday, my fever was 102 and I broke down to see a doctor.  I woke up early Sunday morning to take care of Georgia’s insulin and meds.  Ate some toast and went back to bed to rest.  Woke up […]

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Engage me…

Last week, I had the opportunity to participate in a patient panel at the “Virtual Clinical Trials In Drug Development Conference”, in Philadelphia.       I thought I was a good candidate to participate because in addition to being a patient,  I participated in IFAA‘s “A Community Team” (ACT) as a patient leader running […]

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Sorry for smiling….

Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud.  I wouldn’t say this is surprising.  People have been spying on the disabled for years.  Growing up, I always heard how people “faked disability” to milk the system.  My family […]

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Justify yourself…

The symptoms… The past few months I have been really down.  Emotionally, financially, and physically.  My dog’s medical bills are weighing on me.  I feel constant stress over it.  I picked up another job so now I have three 10-12 hour work days to pay for her care.  I’m exhausted.  I justified that exhaustion to […]

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Who knows best…

Insurance is a blessing and a curse in my life.  I’m grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I’ve written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again.  Why?  Because I had […]

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