Who knows best…

March 18, 2019.Reading time 4 minutes.

Insurance is a blessing and a curse in my life. I’m grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I’ve written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again. Why? Because I had […]

A little bit more…

February 18, 2019.Reading time 5 minutes.

I may have become cocky and over confident in my ability to tolerate pain. On an average day, my fingers, elbows, shoulders, hips, lower back, knees, ankles and feet hurt. A lot. Each day starts out with almost all my joints revolting when I try to stand up in the morning. It eases up […]

You ain’t no copper penny…

January 27, 2019.Reading time 5 minutes.

Recently, I’ve been going through a lot a stress. Health, family, pets, household issues, etc….if I wasn’t for bad luck, I’d seriously have none. On top of it all, I’ve gained a ton of weight from both inactivity due to my broken foot and stress eating. Then I ended up getting sick. The kind of […]

Abled People Are From Mars, Disabled People Are From Venus….

January 6, 2019.Reading time 17 minutes.

I’ve been documenting my journey with my broken foot. It’s been frustrating, painful, and difficult to say the least. Non-weight bearing is hard when you don’t have autoimmune arthritis, but when you do, it’s nearly overwhelming. When I found out my foot hadn’t healed, I decided to stay at my parents’ house over the Christmas […]

Four more weeks…

December 18, 2018.Reading time 8 minutes.

I had my follow up for my broken foot (AKA 5th metatarsal fracture) today. I’ve been trying my best to not bear weight on my foot since 11/1/2018. The past 46 days have been difficult. I’ve tried my best to not walk. I admit, it’s so hard in my stair-filled house, so there are times when […]

In the news…

December 7, 2018.Reading time 1 minute.

A few months ago, I was contacted by a writer looking to do a story about a patient for the American College of Rheumatology‘s online magazine, “The Rheumatologist“. She wanted to talk to someone who had attending the ACR’s annual Advocates for Arthritis event in Washington DC. I was honored someone recommended me for the […]

A scary good day…

December 6, 2018.Reading time 7 minutes.

On Monday, I had my annual mammogram. The following day, I received a message that there was a problem and I needed to come back. I missed the call and didn’t get the message until late, so I had to wait until this morning to call back. The way the message sounded, there was an […]

It’s time to walk, I mean TALK…

December 4, 2018.Reading time 3 minutes.

How many times have I donated to charity walks? About 500 in the past few years, I would guess. I have a hard time walking myself, so I always feel the need to support others who can do so. As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we’ve often talked […]