Getting sick, while being sick…

Two weeks ago, I started with a dry cough.  After my bout with pneumonia, I watched it closely.  By the middle of the week, I felt wrecked.  Body aches, stuffy nose, sore throat, ear ache, etc. I called my doctor but they had no appointments until the following day.  My goal was to return to […]

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Daring to believe…

I just recently started to feel like my new medication is working.  It’s kind of shocking.  My pain level is so much more tolerable.  I still have pain, but I can make it all day without taking extra meds.  My swelling is also getting better.  I still swell when I overdo it, but for the […]

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Sorry for smiling….

Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud.  I wouldn’t say this is surprising.  People have been spying on the disabled for years.  Growing up, I always heard how people “faked disability” to milk the system.  My family […]

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Who knows best…

Insurance is a blessing and a curse in my life.  I’m grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I’ve written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again.  Why?  Because I had […]

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In the news…

A few months ago, I was contacted by a writer looking to do a story about a patient for the American College of Rheumatology‘s online magazine, “The Rheumatologist“. She wanted to talk to someone who had attending the ACR’s annual Advocates for Arthritis event in Washington DC.  I was honored someone recommended me for the […]

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I hope you laugh…

I spend time with a lot of kids.  In my work and in my life, I am surrounded by kids a lot. The other day, a kid came up to me and our conversation went something like this: Kid: I feel so bad for you. Me: Why? Kid: I read your book. Me: (thinking kid […]

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RA Blog Week 2018: Day 5 (Another Wildcard): Politics

Honored to be a part of this 4th annual RA Blog Week 2018.  Thanks to Rick Phillips for organizing and inviting me to participate.  Today’s topic is not one I was able to respond to, so I decided to do another wild card.  Here is today’s prompt: Politics – Health is always a hot item for […]

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RA Blog Week 2018: Day 4, Research…

I’m proud to be a part of the 4th annual RA blog week.  Today’s prompt:  Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced to using research about Rheumatic Disease. […]

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RA Blog Week #2: Because…

I’m proud to be participating in RA Blog week for the 4th year!  It’s always an honor to be included. Today’s blog prompt is:  Tips – How do you stay fit, cope with stress, relax, or capitalize on a great day. Tell us your secrets for the best life possible……But I’m opting out and doing […]

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RA Blog Week 2018: The good, the bad, and the ugly…

I am proud to participate in the 4th annual RA Blog Week.  Thanks to Rick Phillips for organizing this event every year. Day 1 Prompt: The Medicine – Patients with autoimmune disease often are not treated well by Doctors and Pharmacists when we ask for or receive prescription pain medicine.  What has been your experience?   Share […]

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