Getting sick, while being sick…

Two weeks ago, I started with a dry cough.  After my bout with pneumonia, I watched it closely.  By the middle of the week, I felt wrecked.  Body aches, stuffy nose, sore throat, ear ache, etc. I called my doctor but they had no appointments until the following day.  My goal was to return to […]

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Making lemonade…

A year ago, I wrote a book about my dog, Georgia Grace.  Georgia is a Cavalier King Charles Spaniel who lives with multiple, serious chronic illnesses including the top 3:  Syringomyelia, Chronic Valvular Heart Disease, and Diabetes.   I was told her life expectancy was three years.  Today, she is 10 years, 6 months and […]

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Daring to believe…

I just recently started to feel like my new medication is working.  It’s kind of shocking.  My pain level is so much more tolerable.  I still have pain, but I can make it all day without taking extra meds.  My swelling is also getting better.  I still swell when I overdo it, but for the […]

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Oh the places we will go…

I’ve not taken a proper vacation since my dog was diagnosed with diabetes.  I refused to leave her for over two years until this past September, when I traveled to Washington DC for 2 nights for a patient advocacy trip.  I admit that I was a wreck until I had her back in my arms. […]

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A senseless goodbye…

I lost someone I love to drug addiction.  It started with an addiction to prescription pain meds.  He injured his ankle years ago and struggled with the pain.  I figured out he was an addict after I had surgery to repair my broken ankle.  He asked me what medication I was given and I told […]

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I have what???

****I’m updating the story: I started with symptoms on a Tuesday.  Wednesday spiked a fever.  By Saturday, my fever was 102 and I broke down to see a doctor.  I woke up early Sunday morning to take care of Georgia’s insulin and meds.  Ate some toast and went back to bed to rest.  Woke up […]

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Inflammation motivation…

I recently read an article called:  “Chronic inflammation removes motivation by reducing dopamine in the brain.”  Reading the article was one of those “OMG this is me!!!” moments.  For the past few years, I just could not figure out where my motivation went.  Granted, I’m exhausted and in pain….but I have ZERO motivation for things […]

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With a hope and a flare….

This past week, I’ve been dealing with one of the worst flare ups of my disease in years.  I say the word “disease” because honestly, no one seems to know for sure what I have.  Sometimes I’m told I have rheumatoid arthritis.  Other times, I’m told I have psoriatic arthritis or spondyloarthopathy.  All I know….is […]

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Sorry for smiling….

Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud.  I wouldn’t say this is surprising.  People have been spying on the disabled for years.  Growing up, I always heard how people “faked disability” to milk the system.  My family […]

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Who knows best…

Insurance is a blessing and a curse in my life.  I’m grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I’ve written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again.  Why?  Because I had […]

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