As My Joints Turn

My Autoimmune Soap Opera

In addition to my autoimmune arthritis and other chronic illnesses, I’ve written about my skin issues. Right before my diagnosis of Sjogren’s syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis).  I basically get these little circles on my skin. They get hard and sometimes flake.  Over time, they …

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I love summer.  I didn’t have the best summer, but regardless, I always hate seeing it come to an end.  Today is also Labor Day.  A day in which we, in the United States, honoring contribution and achievements of American workers.  I am still able to work with my chronic illnesses.  It’s far from easy. …

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Tomorrow marks my 27th year in a classroom.  I’ve had many different roles over the years.  My current role is as an speech-language pathologist in a public school system.  I love what I do.  Every job has it’s positive and negative aspects.  I love my helping my students become effective communicators, but I despise the …

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I love music.  I love concerts.  The more my disability progresses, the harder it is for me to attend concerts.  See I’m one of those people in the middle.  I definitely struggle with mobility, but I’m not truly in need of a wheelchair.  I’m a “need-a-cane-some-of-the-time” kind of person.  Concerts tend to be in big …

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I’ve written many times about my fear of losing health insurance due to my pre-existing conditions.  Recently, the Justice Department has decided to not defend the Affordable Care Act in court.  Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions.  According the …

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I’m the type of rheumatology patients who has “normal” blood work.  My vitamin D is typically wonky but everything else come back clear.  No explanation as to why I’m so tired.  No explanation for my swollen joints.  Now don’t get me wrong, I DON’T WANT anything to be wrong, I just want an explanation. I …

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