Last week, I had the opportunity to participate in a patient panel at the "Virtual Clinical Trials In Drug Development Conference", in Philadelphia. I thought I was a good candidate to participate because in addition to being a patient, I participated in IFAA's "A Community Team" (ACT) as a patient leader running... Continue Reading →
Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud. I wouldn't say this is surprising. People have been spying on the disabled for years. Growing up, I always heard how people "faked disability" to milk the system. My family... Continue Reading →
The symptoms... The past few months I have been really down. Emotionally, financially, and physically. My dog's medical bills are weighing on me. I feel constant stress over it. I picked up another job so now I have three 10-12 hour work days to pay for her care. I'm exhausted. I justified that exhaustion to... Continue Reading →
Insurance is a blessing and a curse in my life. I'm grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I've written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again. Why? Because I had... Continue Reading →
The why... I've been going through a lot lately. Physically, financially, and emotionally. Life has been a roller coaster without a stop button. I keep thinking about my mom's favorite quote, "this too, shall pass"....and hope for a better tomorrow. Lately, tomorrow seems to be a lifetime away as things pile up....but looking for the bright... Continue Reading →
I may have become cocky and over confident in my ability to tolerate pain. On an average day, my fingers, elbows, shoulders, hips, lower back, knees, ankles and feet hurt. A lot. Each day starts out with almost all my joints revolting when I try to stand up in the morning. It eases up... Continue Reading →
I am often asked about my #spooniedog, Georgia Grace. She is still my feisty, stubborn, and adorable sidekick. On days when I hurt, she has been very protective. This is a change since my cat Lola passed. Georgia was always the "world's worst nurse" but has slowly become my greatest comfort as I've been battling... Continue Reading →
Recently, I've been going through a lot a stress. Health, family, pets, household issues, etc....if I wasn't for bad luck, I'd seriously have none. On top of it all, I've gained a ton of weight from both inactivity due to my broken foot and stress eating. Then I ended up getting sick. The kind of... Continue Reading →
I've always considered myself as lucky that I have amazing doctors. I recently decided to change primary care doctor because of the location and their hours. It was a bit too hard to get an appointment when I was sick. I found myself going to walk-in clinics when I had a sinus infection or bronchitis.... Continue Reading →
In another episode of "As my joints turn: my autoimmune soap opera". I walked in from work on 1/3/2019. I was still on crutches and non-weight bearing due to my broken foot. I was hobbling into the living room with my coat on and two bags on my arm. My cat Milo decided to run... Continue Reading →
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