Humidity is not my friend…

So I’m now fully into the 2nd month without Humira. The summer heat and humidity has been rough but overall I’m hanging in there. My ankles might not agree (they are swollen and sore) but for the most part my RA is cooperating with my decision to travel to Africa.

On another note, I recently joined several fan pages on facebook for RA bloggers/writers, etc. There is one page (I won’t name it) that was slamming another woman’s page b/c she feels her RA isn’t severe enough and she can’t relate to her. I understand her point of view, I just think it is so sad that she had to call this person out and say, “She’s a great gal but ….” The more I am immersing myself in these blogs for a community of fellow RA sufferers, the more I see little tolerance for others. I “unliked” her page. I don’t need the negative karma and would never slam someone b/c their RA is on a different level than mine. Awareness is key but tolerance is necessary.

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Kelly holds masters degrees in both Special Education and Speech-Language Pathology. She works full-time as a speech-language pathologist in both a public school setting and as an adjunct faculty member at a university, in Philadelphia, PA. She specializes in both autism and augmentative/alternative communication and took her skills to Uganda, Africa to start a special needs program for disabled children living in an orphanage in 2011. Kelly began experiencing symptoms of autoimmune arthritis in 1984 (while in her teens) but wasn’t officially diagnosed with autoimmune arthritis until 2001. Her first diagnosis was Sjogren’s syndrome. Eventually her diagnosis was changed to sero-negative RA and now Polyarticular Spondlyoarthropathy. She also manages thyroid disease (resulting from Graves Disease), fibromyalgia, renin-deficient hypertension, and disseminated superficial actinic porokeratosis (DSAP) on a daily basis. Kelly connected with other autoimmune arthritis patients via social media in 2008. She began volunteering with the “Buckle Me UP! Movement”, which evolved into the International Autoimmune Arthritis Movement (IAAM) beginning in 2009. Then became a cofounder of IFAA in 2013. She has represented the ACR on Capitol Hill as an Advocate for Arthritis, was a finalist in Wego Health’s Health Activist Hero awards in 2014, and speaks at various healthcare conferences as a patient advocate in the Philadelphia area.

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