As My Joints Turn

My Autoimmune Soap Opera

My cousin died this week at the age of 36 from a pulmonary embolism.  It was a shock.  It is painful. She was a ray of light and a good human being.  I did not know her well as a kid.  She was 10 years younger me and on the side of my family that I didn’t see often.  Erin “Fluff” and I reconnected on Facebook in 2009.  She was funny, opinionated, a huge Philadelphia sports fan.  I liked her a lot.  In 2010, my 34 year old cousin died of leukemia/lymphoma.  Erin reached out to share stories of Chris (they were not cousins and I didn’t know they knew each other).  She was a support I didn’t expect, but one I grew to rely on.  After that, I interacted with Erin in person or via Facebook,  just about every day until she died last week.

I laughed at her posts, encouraged her when she was down, and commiserated our love of Philadelphia teams that just suck.  She did the same for me.  Erin was a force of nature, a personality as bright as the sun, and a heart that was bigger than life.  Her life ending is a loss for many.  She had over 2,000 Facebook friends and I think just about everyone showed up at her wake.  An appropriate tribute to a great woman.

I live with multiple autoimmune diseases and it causes me be cranky from the pain and fatigue.  I often kick myself for letting life pass me by at times.  Honestly, I feel better than I have in years on my current medication cocktail.  I’m just stuck in my ways.  It’s time to shake things up.  It’s time to live life to the fullest.  You never know how much time you will be granted on Earth.  You might as well make the most of it.

This weekend was one of Erin’s favorite times of year. St. Patrick’s Day.  So this weekend, “Shine your light while you got one”.  Make a toast to “Fluff” and live life thoughtfully.  Rest in Peace Fluff.  I will miss your light.  Until we meet again my friend.  #TeamFluff

An Irish Blessing:

An Old Irish Blessing
May the road rise up to meet you.
May the wind always be at your back.
May the sun shine warm upon your face,
and rains fall soft upon your fields.
And until we meet again,
May God hold you in the palm of His hand.

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