As My Joints Turn

My Autoimmune Soap Opera

A few years ago, I learned about the American College of Rheumatology (ACR) event called “Advocates for Arthritis”.   The ACR ask people from all over the US who live with arthritis to apply to attend the event held in Washington DC.  It is an “annual event that brings together rheumatology professionals and patients to advocate on behalf of the rheumatology community.” (- See more at:  We attend trainings on issues affecting doctors and patients within the rheumatology community then meet with our representatives in both congress and the senate to let our voices be heard.

capitol hill

ACR #AdvocatesforArthritis 2013

I was honored to be a part of this event in 2013.  I had told my best friend’s son about it.  He was diagnosed with ankylosing spondylitis a few years ago and is interested in becoming a rheumatologist.  He told me he was interested in attending some time, so this year, we applied and were both accepted. I will represent the state of Pennsylvania and he will represent New Jersey.  I’m so excited to have him learn about advocacy and to share this experience with him!

I will keep the blog updated daily.  Wish me luck!  #AdvocatesforArthritis

5 thoughts on “A patient goes to Washington…

  1. Rick Phillips says:

    What a terrific event. We are so excited to have you in DC advocating for our interests. I look forward to joining you some day.

    Liked by 1 person

  2. When is a good time to watch for applications for next year? I love doing this kind of thing. Though I no longer do it professionally, it would be serious fun to dip my toes back in that water.


    1. Hi Rick! The application comes out in June. I wasn’t going to go again, but my BFF’s son was interested and I really wanted to share the experience with him. I kind of forgot to post about it this year. I will remember to do so in the future….but June is when the application comes out. Make sure to follow @ACRheum on twitter. Wish me luck! It’s a lot of walking!!


  3. Hi Kelly,
    Thank you for helping raise awareness for Advocates for Arthritis. The ACR is excited and honored to have you and other patients with rheumatic diseases on Capitol Hill during the next couple of days.

    Bonny Senkbeil
    (Director of PR, America College of Rheumatology)


    1. Thank you Bonnie! I am honored to be here.


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