As My Joints Turn

My Autoimmune Soap Opera

A few years ago, I learned about the American College of Rheumatology (ACR) event called “Advocates for Arthritis”.   The ACR ask people from all over the US who live with arthritis to apply to attend the event held in Washington DC.  It is an “annual event that brings together rheumatology professionals and patients to advocate on behalf of the rheumatology community.” (- See more at: http://www.rheumatology.org/Advocacy/Advocates-for-Arthritis#sthash.GUjKOaFl.dpuf).  We attend trainings on issues affecting doctors and patients within the rheumatology community then meet with our representatives in both congress and the senate to let our voices be heard.

capitol hill

ACR #AdvocatesforArthritis 2013

I was honored to be a part of this event in 2013.  I had told my best friend’s son about it.  He was diagnosed with ankylosing spondylitis a few years ago and is interested in becoming a rheumatologist.  He told me he was interested in attending some time, so this year, we applied and were both accepted. I will represent the state of Pennsylvania and he will represent New Jersey.  I’m so excited to have him learn about advocacy and to share this experience with him!

I will keep the blog updated daily.  Wish me luck!  #AdvocatesforArthritis

5 thoughts on “A patient goes to Washington…

  1. Rick Phillips says:

    What a terrific event. We are so excited to have you in DC advocating for our interests. I look forward to joining you some day.

    Liked by 1 person

  2. When is a good time to watch for applications for next year? I love doing this kind of thing. Though I no longer do it professionally, it would be serious fun to dip my toes back in that water.

    Like

    1. Hi Rick! The application comes out in June. I wasn’t going to go again, but my BFF’s son was interested and I really wanted to share the experience with him. I kind of forgot to post about it this year. I will remember to do so in the future….but June is when the application comes out. Make sure to follow @ACRheum on twitter. Wish me luck! It’s a lot of walking!!

      Like

  3. Hi Kelly,
    Thank you for helping raise awareness for Advocates for Arthritis. The ACR is excited and honored to have you and other patients with rheumatic diseases on Capitol Hill during the next couple of days.

    Bonny Senkbeil
    (Director of PR, America College of Rheumatology)

    Like

    1. Thank you Bonnie! I am honored to be here.

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

A Chronic Spoonful

Thoughts and stories from the world of chronic pain, illness, and disability

Lavender and Levity

Laughing at myself, and learning to love (live with) it!

Chronically Undiagnosed

A therapist's journey through chronic illness

Reclaiming HOPE

Learning to Thrive, Not Just Survive, With Fibromyalgia

Past the Isle of Dogs

My adventures in self-publishing and other gibberish

Carla's Corner

Because I can't keep silent

∞ itis

Rheumatoid Arthritis, autoimmunity, and life

Wheelescapades

Tea, Tours and Escapades

Jamison Writes

Not Like The Whiskey

The World Sees Normal

How Does the World See You?

The World Sees Normal!

The Truth About Chronic Illness

MINAMACS DAILY BLOG

My favorite things Nail designs, makeup tutorial,qoutes,food art,Health & wellness,candles,music.etc..

Chronically catherine

Musings of a Young Arthritic

Limberation

Limber Up to Live Life

Healthy Body Support

Fuel your body with all the nutrients it requires for healthy, long lasting, energetic service.

Sad N Blue

Effecting coping methods for depression and anxiety

rawthoughtshealing.wordpress.com/

Uncensored thoughts and holistic services to help heal your body and mind.

Nikki's Confetti Life

Compositions of my life energy

debthorpeknits

Just another WordPress.com site

FairyLab Soaps, LLC

Handcrafted Milk- & Yogurt-Based Soaps and Such

%d bloggers like this: