Goodbye to you…

2016 has not been my best year.  Just a few highlights:

  1. Dad had a stroke (he is thankfully doing well now)
  2. I was in a car accident in which my car was totaled and my neck was injured (lucky I wasn’t more seriously injured, but it really rocked my world for a while)
  3. I had to put my beloved 13 year old cat to sleep (See previous post Goodbye my Queen)
  4. My 5th biologic drug failed and I had some of the worst flares I’ve had in 9 years.
  5. My beautiful Cavalier King Charles Spaniel has been diagnosed with a heart murmur (heart disease is the #1 killer of these precious dogs and she is already battling syringomyelia, hip dysplasia, arthritis, chronic dry eye, and now a heart murmur).
  6. Spent the holiday  with a sinus infection AND the stomach flu and could not begin my monthly doses of my new biologic on time. (just my luck)

Seriously, 2016 can’t end fast enough (in my humble opinion).

Through all of this, I always try to remain positive.  Granted, I had many mini-breakdowns along the way but I always try to remember things could always be worse.

I’m not big on resolutions, but now I have to get Georgia on a “heart-healthy diet”, so I figure I should do the same.  I’ve been on prednisone for almost a year and the weight gain has been significant.  A failing drug made it so hard for me to do daily living tasks like cooking and cleaning.  Take out is way easier when you can’t slice ingredients or wash dishes.  Exercise on swollen joints after working all day, just didn’t happen.  I couldn’t really control that, but now that prednisone and a failing biologic are in the past, it’s time to take control back.  I’ve let my health get away from me by focusing on all the negative things that happened throughout 2016.  In 2017, I’m planning a healthier me which hopefully will make a happier me.

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#spoonies in parkas

Thank you for all of your support this past year.  I wish you and your families a happy and healthy 2017.  Due to the stomach bug, I’ll spend New Year’s Eve with my #spoonie dog, Georgia and my kittens, Milo and Jax on my couch.  The kittens will never replace my dear Lola, but they are filling that hole in my heart.  They are pretty cute, too.

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The “terror” twins Milo and Jaxson

 

It is not the NYE I had planned, but like always, I know it could be worse.  So I’ll remain eternally optimistic that tomorrow will be a better day.  Happy New Year my #spoonie friends!

happnewyear

 

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Kelly holds masters degrees in both Special Education and Speech-Language Pathology. She works full-time as a speech-language pathologist in both a public school setting and as an adjunct faculty member at a university, in Philadelphia, PA. She specializes in both autism and augmentative/alternative communication and took her skills to Uganda, Africa to start a special needs program for disabled children living in an orphanage in 2011. Kelly began experiencing symptoms of autoimmune arthritis in 1984 (while in her teens) but wasn’t officially diagnosed with autoimmune arthritis until 2001. Her first diagnosis was Sjogren’s syndrome. Eventually her diagnosis was changed to sero-negative RA and now Polyarticular Spondlyoarthropathy. She also manages thyroid disease (resulting from Graves Disease), fibromyalgia, renin-deficient hypertension, and disseminated superficial actinic porokeratosis (DSAP) on a daily basis. Kelly connected with other autoimmune arthritis patients via social media in 2008. She began volunteering with the “Buckle Me UP! Movement”, which evolved into the International Autoimmune Arthritis Movement (IAAM) beginning in 2009. Then became a cofounder of IFAA in 2013. She has represented the ACR on Capitol Hill as an Advocate for Arthritis, was a finalist in Wego Health’s Health Activist Hero awards in 2014, and speaks at various healthcare conferences as a patient advocate in the Philadelphia area.

2 thoughts on “Goodbye to you…

  1. Of course, i hope 2017 is much better. All I know is that we are most often judged by the company you keep and with those three animals you are keep excellent company. Happy New Years from Sheryl and myself!!!

    Liked by 1 person

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