As My Joints Turn

My Autoimmune Soap Opera

31178444_457029181416779_6550401244723150848_n-1Today I was in a lot of pain.  My ankle and feet were so swollen that I could barely walk.  Each step I took felt like I was walking on a joints made of glass that shatter with each step I take. I try not to complain about my pain. I try to wave it off when people see me limp and ask if I am ok.  I try to focus on other stuff to avoid breaking down in tears.  I try not to wish that I was normal and healthy…..because I know that wish will never come true.

I no longer hold out hope that I will ever feel better.  I guess now, I just try to hope for a good day once in a while.

The swelling in my left foot is so bad that it has me worried.  I did some research and I am fairly certain that I have edema.  I am seeing my rheumatologist in 2 weeks and I decided to try some different things to see if I can clear up this swelling.  I can easily call my doctor, but I know the treatment will be prednisone.  Instead, I decided to go gluten and dairy free with no/low sodium and low carbs to see if a change in diet could help reduce my pain and swelling.  I am also wearing compression socks, taking short walks hourly, and keeping my leg elevated as much as possible.  So far, I’m seeing no improvement or change whatsoever.  Worst case scenario, there will be no change and I will have to cave and go on a dose of prednisone.  Best case scenario, I’ll lose weight while I begin to feel better.  Regardless, I figure it will give me some good data before seeing my rheumatologist.

Everyone claims gluten free makes you feel amazing.  This is my third round of  the gluten-free diet and honestly, it’s never done anything much for me.  When I tell gluten-free people that, I’m told “You must not be doing it right.” (Like I can’t figure out which items I am eating have gluten or not??)  I know people have good intentions, but it’s just so infuriating.  It makes me want to chow down on a big old bowl of gluten in front of them while wearing a shirt that says, “Gluten is my spirit animal”.

I’m so very tired of feeling grumpy because of pain.  I guess it’s time to be grumpy because I can’t eat my favorite foods!  LOL  So wish me luck as I try to feel better through a change in diet.


6 thoughts on “I try…

  1. ccclisa says:

    I chuckled at your comments about gluten. I did the diet so strict for nine months, and had no change either. We’re all so different!

    Liked by 1 person

    1. Thank you for saying that! I felt like such a failure!

      Liked by 1 person

  2. Rick Phillips says:

    I am so sorry the ankle is so swollen. I have never tried Gluten Free as a way to reduce inflammation. Truthfully I do not put much credence in the gluten free approach, but I hope it works when people give it a whirl.

    Liked by 1 person

    1. Honestly, the sodium is what I think may be causing it. My rheumatologist gave me an article about pain relief with gluten. I am also a skeptic. My ankle is fine this weekend. Maybe I need a work-free diet! LOL Walking at work is so difficult with the LONG hallways. Regardless, I’m sticking to it. I hate it, but I need to give it the old college try. Hope you are well!

      Liked by 1 person

  3. Mary Vaughn says:

    I too chuckled at your comments. Gluten-free has not worked for us but whole grain, low sodium and staying away from highly processed foods has really helped us. It’s so hard though. Hugs and puppy kisses from the Vaughn Spoonies.

    Liked by 1 person

    1. Thanks Mary! I hope you and your husband are doing well!

      Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

A Chronic Spoonful

Thoughts and stories from the world of chronic pain, illness, and disability

Lavender and Levity

Laughing at myself, and learning to love (live with) it!

Chronically Undiagnosed

A therapist's journey through chronic illness

Reclaiming HOPE

Learning to Thrive, Not Just Survive, With Fibromyalgia

Past the Isle of Dogs

My adventures in self-publishing and other gibberish

Carla's Corner

Because I can't keep silent

∞ itis

Rheumatoid Arthritis, autoimmunity, and life


Tea, Tours and Escapades

Jamison Writes

Not Like The Whiskey

The World Sees Normal

How Does the World See You?

The World Sees Normal!

The Truth About Chronic Illness


My favorite things Nail designs, makeup tutorial,qoutes,food art,Health & wellness,candles,music.etc..

Chronically catherine

Musings of a Young Arthritic


Limber Up to Live Life

Healthy Body Support

Fuel your body with all the nutrients it requires for healthy, long lasting, energetic service.

Sad N Blue

Effecting coping methods for depression and anxiety

Uncensored thoughts and holistic services to help heal your body and mind.

Nikki's Confetti Life

Compositions of my life energy


Just another site

FairyLab Soaps, LLC

Handcrafted Milk- & Yogurt-Based Soaps and Such

%d bloggers like this: