RD Blogweek Day 5: Advice…

FInal-2019-JPGH-badge-marked-RD-not-RAI’m proud to participate in the 5th annual RA Blog Week.  Today’s topic:

Advice – What advice would you give to your newly diagnosed self after what you’ve learned living with RD?

 

Today has been a very difficult day.  Not because of my help, but because of my dog’s health.  The past three days I’ve taken her back and forth to veterinarians, specialists, and even a trip to the ER.  Then when I was asked to attend an evening work function, I still went (and took the dog) because I didn’t want to let anyone down.  I’m exhausted but can’t rest because I need to pack for an out-of-town wedding.  I’ll need to pack the dog and cat’s in addition to myself.  I need to get up at 5:30 am to get to work on time, then need to drive 2 hours to get to my destination.  It’s after 9:30 pm.  I’m only 1/2 packed.  I’m exhausted.  I just can’t do it all.  There is always tomorrow.

So my advice to my early diagnosed self:  You can’t do it all, and that is okay. Be kind to yourself and don’t be afraid to rest when you need it…..even when under pressure.

Short and sweet….because I’m tired and my eyes are a bit blurry from shedding tears at the vet tonight.  I need to take a page from Georgia’s book when dealing with Chronic Illness.  She always does it with a smile, no matter what.

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Thanks to Rick Phillips for organizing RA Blog week.  I’m proud to participate!

 

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Kelly holds masters degrees in both Special Education and Speech-Language Pathology. She works full-time as a speech-language pathologist in both a public school setting and as an adjunct faculty member at a university, in Philadelphia, PA. She specializes in both autism and augmentative/alternative communication and took her skills to Uganda, Africa to start a special needs program for disabled children living in an orphanage in 2011. Kelly began experiencing symptoms of autoimmune arthritis in 1984 (while in her teens) but wasn’t officially diagnosed with autoimmune arthritis until 2001. Her first diagnosis was Sjogren’s syndrome. Eventually her diagnosis was changed to sero-negative RA and now Polyarticular Spondlyoarthropathy. She also manages thyroid disease (resulting from Graves Disease), fibromyalgia, renin-deficient hypertension, and disseminated superficial actinic porokeratosis (DSAP) on a daily basis. Kelly connected with other autoimmune arthritis patients via social media in 2008. She began volunteering with the “Buckle Me UP! Movement”, which evolved into the International Autoimmune Arthritis Movement (IAAM) beginning in 2009. Then became a cofounder of IFAA in 2013. She has represented the ACR on Capitol Hill as an Advocate for Arthritis, was a finalist in Wego Health’s Health Activist Hero awards in 2014, and speaks at various healthcare conferences as a patient advocate in the Philadelphia area.

6 thoughts on “RD Blogweek Day 5: Advice…

  1. I hope you and Georgia (and yes even the cat) have a great weekend wedding. Remember Blog week is always no pressure. 🙂

    Like

  2. Hi Kelly, I am a little concerned. I hope you are well. I have been reaching out because you are the first place winner in the RDBlog week drawing. Hey write me back when you get a chance so I can deliver the prize.

    Liked by 1 person

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