Daring to believe…

I just recently started to feel like my new medication is working.  It’s kind of shocking.  My pain level is so much more tolerable.  I still have pain, but I can make it all day without taking extra meds.  My swelling is also getting better.  I still swell when I overdo it, but for the […]

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Oh the places we will go…

I’ve not taken a proper vacation since my dog was diagnosed with diabetes.  I refused to leave her for over two years until this past September, when I traveled to Washington DC for 2 nights for a patient advocacy trip.  I admit that I was a wreck until I had her back in my arms. […]

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Sorry for smiling….

Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud.  I wouldn’t say this is surprising.  People have been spying on the disabled for years.  Growing up, I always heard how people “faked disability” to milk the system.  My family […]

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You ain’t no copper penny…

Recently, I’ve been going through a lot a stress.  Health, family, pets, household issues, etc….if I wasn’t for bad luck, I’d seriously have none.  On top of it all, I’ve gained a ton of weight from both inactivity due to my broken foot and stress eating.  Then I ended up getting sick.  The kind of […]

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Abled People Are From Mars, Disabled People Are From Venus….

I’ve been documenting my journey with my broken foot. It’s been frustrating, painful, and difficult to say the least. Non-weight bearing is hard when you don’t have autoimmune arthritis, but when you do, it’s nearly overwhelming. When I found out my foot hadn’t healed, I decided to stay at my parents’ house over the Christmas […]

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Four more weeks…

I had my follow up for my broken foot (AKA 5th metatarsal fracture) today.  I’ve been trying my best to not bear weight on my foot since 11/1/2018.  The past 46 days have been difficult.  I’ve tried my best to not walk.  I admit, it’s so hard in my stair-filled house, so there are times when […]

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It’s time to walk, I mean TALK…

How many times have I donated to charity walks? About 500 in the past few years, I would guess.  I have a hard time walking myself, so I always feel the need to support others who can do so.  As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we’ve often talked […]

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Warning: Over use of CAP LOCKS and a full-on rant inside….

Today was a terrible, horrible, no good, very bad day (extra points if you know that book!)….well, I may be a little melodramatic, but my day sucked the life out of me.  It started with about 2.5 hours of sleep.  I had to use my crutches a lot yesterday while traveling home from my holiday […]

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My Tail bone’s connected to my foot bone??

Today, I had jury duty.  It went a little something like this: 1. Ask to park in the handicapped parking area, but am sent to the farthest spot away from the elevators because the juror parking lot is closed and they don’t have a handicapped spot in that section. 2. Am told that if I […]

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Times like these….

I love music.  I love concerts.  The more my disability progresses, the harder it is for me to attend concerts.  See I’m one of those people in the middle.  I definitely struggle with mobility, but I’m not truly in need of a wheelchair.  I’m a “need-a-cane-some-of-the-time” kind of person.  Concerts tend to be in big […]

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