I just recently started to feel like my new medication is working. It's kind of shocking. My pain level is so much more tolerable. I still have pain, but I can make it all day without taking extra meds. My swelling is also getting better. I still swell when I overdo it, but for the... Continue Reading →
Oh the places we will go…
I've not taken a proper vacation since my dog was diagnosed with diabetes. I refused to leave her for over two years until this past September, when I traveled to Washington DC for 2 nights for a patient advocacy trip. I admit that I was a wreck until I had her back in my arms.... Continue Reading →
Sorry for smiling….
Recently, social media has been buzzing with the warning that the government will soon be using social media tracking to crack down on disability fraud. I wouldn't say this is surprising. People have been spying on the disabled for years. Growing up, I always heard how people "faked disability" to milk the system. My family... Continue Reading →
You ain’t no copper penny…
Recently, I've been going through a lot a stress. Health, family, pets, household issues, etc....if I wasn't for bad luck, I'd seriously have none. On top of it all, I've gained a ton of weight from both inactivity due to my broken foot and stress eating. Then I ended up getting sick. The kind of... Continue Reading →
Abled People Are From Mars, Disabled People Are From Venus….
I've been documenting my journey with my broken foot. It's been frustrating, painful, and difficult to say the least. Non-weight bearing is hard when you don't have autoimmune arthritis, but when you do, it's nearly overwhelming. When I found out my foot hadn't healed, I decided to stay at my parents' house over the Christmas... Continue Reading →
Four more weeks…
I had my follow up for my broken foot (AKA 5th metatarsal fracture) today. I've been trying my best to not bear weight on my foot since 11/1/2018. The past 46 days have been difficult. I've tried my best to not walk. I admit, it's so hard in my stair-filled house, so there are times when... Continue Reading →
It’s time to walk, I mean TALK…
How many times have I donated to charity walks? About 500 in the past few years, I would guess. I have a hard time walking myself, so I always feel the need to support others who can do so. As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we've often talked... Continue Reading →
Warning: Over use of CAP LOCKS and a full-on rant inside….
Today was a terrible, horrible, no good, very bad day (extra points if you know that book!)....well, I may be a little melodramatic, but my day sucked the life out of me. It started with about 2.5 hours of sleep. I had to use my crutches a lot yesterday while traveling home from my holiday... Continue Reading →
My Tail bone’s connected to my foot bone??
Today, I had jury duty. It went a little something like this: 1. Ask to park in the handicapped parking area, but am sent to the farthest spot away from the elevators because the juror parking lot is closed and they don't have a handicapped spot in that section. 2. Am told that if I... Continue Reading →
Times like these….
I love music. I love concerts. The more my disability progresses, the harder it is for me to attend concerts. See I'm one of those people in the middle. I definitely struggle with mobility, but I'm not truly in need of a wheelchair. I'm a "need-a-cane-some-of-the-time" kind of person. Concerts tend to be in big... Continue Reading →