How many times have I donated to charity walks? About 500 in the past few years, I would guess. I have a hard time walking myself, so I always feel the need to support others who can do so. As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we’ve often talked about getting a charity walk together, but our members and volunteers are global, so location was an issue. Our innovative thinker/CEO Tiffany came up with a brilliant idea. Since so many patients with autoimmune and auto inflammatory arthritis have a hard time walking, lets change the narrative and have a charity TALK. “The “Talk” to Impact AiArthritis aims to jump start the conversations that will drive IFAA’s future work and to begin raising the funds necessary to mobilize 1,000 new voices in 2019. Every week will focus on a different theme, each with various breakout topics.” Topics during the month-long event include:
(Week 1: 12/2-7): Awareness & Communication: This week we will discuss disease misunderstandings, communication between patients and others in their lives, OA vs AiArthritis, and limitations in the workplace/home.
(Week 2: 12/8-14): Detection & Diagnosis: Let’s talk about issues surrounding delay in diagnosis, misdiagnosis, re-diagnosis, atypical disease, and undifferentiated disease.
(Week 3: 12/15-21): Hot Topics: Hot topics this week will include Pain, Opioids, Medical Marijuana/CBD, and Clean Eating/Diet.
(Week 4: 12/22-28): Innovative Advancements: Join IFAA to see how we do online brainstorming sessions to identify & solve the most pressing community issues! Topics include precision medicine, clinical trial participation, and access to treatment.
(The Final Stretch: 12/29-31): Vocal Impact in 2019! Join IFAA as we introduce our NEW AiArthritis Voices site, Systemically Connected Podcast, and other mission work for 2019!
Who should participate? Patients, caregivers, loved ones, friends, family and co-workers. Basically anyone living with or knowing a person who lives with autoimmune or auto inflammatory arthritis.
Those with scheduling conflicts or who are flaring, so unable to join discussions in real time? No problem! Just REGISTER and receive weekly event updates and links to join existing discussions. Then join any time at your convenience!
Stop by our pages and join the discussion today!
I can’t wait to hear your voices all month long! See you there!