I'm proud to be a part of the 4th annual RA blog week. Today's prompt: Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced to using research about Rheumatic Disease.... Continue Reading →
I'm honored to be a part of the 4th annual RA blog week. Today's prompt is: Mindfulness – What does mindfulness mean to you and how can it help as we live with our autoimmune condition? About 10 years ago, I learned about a Mindfulness course offered through the Myrna Brind Center at Thomas Jefferson Hospital... Continue Reading →
I am proud to participate in the 4th annual RA Blog Week. Thanks to Rick Phillips for organizing this event every year. Day 1 Prompt: The Medicine – Patients with autoimmune disease often are not treated well by Doctors and Pharmacists when we ask for or receive prescription pain medicine. What has been your experience? Share... Continue Reading →
In addition to my autoimmune arthritis and other chronic illnesses, I've written about my skin issues. Right before my diagnosis of Sjogren's syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis). I basically get these little circles on my skin. They get hard and sometimes flake. Over time, they... Continue Reading →
I love summer. I didn't have the best summer, but regardless, I always hate seeing it come to an end. Today is also Labor Day. A day in which we, in the United States, honoring contribution and achievements of American workers. I am still able to work with my chronic illnesses. It's far from easy.... Continue Reading →
I wrote earlier this week about starting my 27th year in the field of education. I'm a speech therapist. You wouldn't think a speech therapist would be on her feet lot, but I work in schools and what do schools have?? LONG hallways and multiple flights of stairs. I also work a part time job... Continue Reading →
Tomorrow marks my 27th year in a classroom. I've had many different roles over the years. My current role is as an speech-language pathologist in a public school system. I love what I do. Every job has it's positive and negative aspects. I love my helping my students become effective communicators, but I despise the... Continue Reading →
I'm exhausted. Utterly exhausted. I shouldn't be. I'm not working. I'm on vacation for two weeks, but I have no energy. My body aches. My bones are tired. I feel 80 years old. I don't like it. This was going to be my summer of getting stuff done. I was going to write my... Continue Reading →
I've been neglecting my blog this past month to focus on a book I was writing. I had previously written 4-5 drafts before finally settling in a banging out a complete draft that I didn't hate this summer. I sent it to an editor and just uploaded my book to be published. It's been a... Continue Reading →
Every year, WegoHealth has their annual Health Awards. There are various categories that honor Patient Advocates/Leaders who are active on various social media platforms. I'm so touched and honored to say that I have been nominated. This year, people were kind enough to nominate me in two categories. Click on the badges to vote for... Continue Reading →
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