So long summer…

I love summer.  I didn’t have the best summer, but regardless, I always hate seeing it come to an end.  Today is also Labor Day.  A day in which we, in the United States, honoring contribution and achievements of American workers.  I am still able to work with my chronic illnesses.  It’s far from easy.  Heck, even my rheumatologist asked me to decrease the amount of time that I work. Unfortunately, that is not something I can do financially.  I admit, that last week, my ankles let me know they were unhappy with my

61e944f4-9baf-4bd6-bbd3-953fab26f450
Took off with my shoes and saw this lovely sight.

return to full-time employment. So I’m determined to change my sleep schedule and get REST this year.  I’m hoping that rest while working full AND part time will help.

Tonight, I’m ending my summer by watching American Ninja Warrior.  I’m sort of obsessed with this show (and not just because one of the hosts has RA- Matt Iseman). Could you imagine if there was a ninja competition for the chronically ill?  What would it be called, American Spoonie Ninja??  Or Chronic Life Ninja?  Instead of the salmon ladder and the jumping spider, we’d have the vacuum the living room and take a shower without a shower chair events.  The final challenge would be walking up a flight of stairs while carrying a bag of groceries. It would be a hit!

Ugh…if I didn’t laugh…..

I hope you are all having a lovely evening.  Be well fiends!

 

 

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Kelly holds masters degrees in both Special Education and Speech-Language Pathology. She works full-time as a speech-language pathologist in both a public school setting and as an adjunct faculty member at a university, in Philadelphia, PA. She specializes in both autism and augmentative/alternative communication and took her skills to Uganda, Africa to start a special needs program for disabled children living in an orphanage in 2011. Kelly began experiencing symptoms of autoimmune arthritis in 1984 (while in her teens) but wasn’t officially diagnosed with autoimmune arthritis until 2001. Her first diagnosis was Sjogren’s syndrome. Eventually her diagnosis was changed to sero-negative RA and now Polyarticular Spondlyoarthropathy. She also manages thyroid disease (resulting from Graves Disease), fibromyalgia, renin-deficient hypertension, and disseminated superficial actinic porokeratosis (DSAP) on a daily basis. Kelly connected with other autoimmune arthritis patients via social media in 2008. She began volunteering with the “Buckle Me UP! Movement”, which evolved into the International Autoimmune Arthritis Movement (IAAM) beginning in 2009. Then became a cofounder of IFAA in 2013. She has represented the ACR on Capitol Hill as an Advocate for Arthritis, was a finalist in Wego Health’s Health Activist Hero awards in 2014, and speaks at various healthcare conferences as a patient advocate in the Philadelphia area.

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