I have a new 4 year old neighbor. He is a doll. The friendliest child I have ever met. Today he told me that he saw me leaving for work (at 7:00 am) but he didn't recognize me. I was confused. Couldn't figure out what he was talking about. He said, "I thought you were... Continue Reading →
When I tell people I have rheumatoid arthritis, I get one of three responses:1. "I have that, too! It’s in my knee/shoulder/hand!." (they have osteoarthritis, not RA) 2. "You are too young for arthritis." (uh, my symptoms started at 14)3. "You look great! You don’t look sick at all." (I feel like I live with the... Continue Reading →
In my mind, I'm still in my 20's and living without autoimmune arthritis. Physically fit, young, full of potential.... Then I look in a mirror. I see the lines and wrinkles creeping up on my 45 year old face. I watch the limp as I walk, I see the swelling of my knuckles.... but in... Continue Reading →
8/13/16: My final update. My queen has passed....."You might be gone from my sight, but you are never gone from my heart."My phone rang at 2:00 am. A vet at the emergency hospital told me that Lola "arrested and passed". I'm surprised none of you heard my scream as my heart broke in two. I... Continue Reading →
*** Updated on 9/28/2015: This is my Wildcard Submission for #RABlog week Day 5. One of the topics was I feel supported, so I am using this old blog to share. I think it fits the topic of feeling supported. I still feel this way. Hope you like it.Don't forget to check out the other... Continue Reading →
I've never been very confident in my appearance. My best feature (in my opinion) is my hands Seriously, that was always the one part of my body that I took a lot of pride in. Well, autoimmune arthritis has decided my vanity in that area needed to be squished. This is what my hands look like... Continue Reading →
Time. You always think you have plenty of it but when you live with autoimmune arthritis, time is not your friend. In order to make it to work in the morning, I have to set my clock an hour before I need to get up. Why? Because it takes me at least an hour to... Continue Reading →
I spoke at a pharmaceutical conference recently. They introduced me as a "Health Activist". One of the pharmaceutical reps asked me what made me decide to become a health activist. I wasn't sure how to answer because I don't really see myself as an "activist". After some though I said, "I realized health care had... Continue Reading →
My cousin died this week at the age of 36 from a pulmonary embolism. It was a shock. It is painful. She was a ray of light and a good human being. I did not know her well as a kid. She was 10 years younger me and on the side of my family that... Continue Reading →
I have taken a 2 year hiatus from blogging. Not that I was ever overly proficient but the last two years of my life have held many highs and lows. When I last posted, I was beginning a new biologic. It was a miracle. I saw my ankle for the first time in 7 or... Continue Reading →
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