How many times have I donated to charity walks? About 500 in the past few years, I would guess. I have a hard time walking myself, so I always feel the need to support others who can do so. As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we've often talked... Continue Reading →
Today was a terrible, horrible, no good, very bad day (extra points if you know that book!)....well, I may be a little melodramatic, but my day sucked the life out of me. It started with about 2.5 hours of sleep. I had to use my crutches a lot yesterday while traveling home from my holiday... Continue Reading →
I fell. Not sure how I did it, or why it happened, but I fell down two steps and crashed into the cement sidewalk at the bottom. I saw stars. I wasn't sure if I hurt myself or not, but all I could think about was Georgia needs her insulin. I need to be okay.... Continue Reading →
I saw this meme on facebook yesterday and it gave me all kinds of feelings. I shared it and so many people posted sad faces. I honestly didn't share it to make people feel sad for me. I shared it because It's so comforting to realize I'm not the only one who felt this way.... Continue Reading →
I spend time with a lot of kids. In my work and in my life, I am surrounded by kids a lot. The other day, a kid came up to me and our conversation went something like this: Kid: I feel so bad for you. Me: Why? Kid: I read your book. Me: (thinking kid... Continue Reading →
Today, I had jury duty. It went a little something like this: 1. Ask to park in the handicapped parking area, but am sent to the farthest spot away from the elevators because the juror parking lot is closed and they don't have a handicapped spot in that section. 2. Am told that if I... Continue Reading →
Honored to be a part of this 4th annual RA Blog Week 2018. Thanks to Rick Phillips for organizing and inviting me to participate. Today's topic is not one I was able to respond to, so I decided to do another wild card. Here is today's prompt: Politics – Health is always a hot item for... Continue Reading →
I'm proud to be a part of the 4th annual RA blog week. Today's prompt: Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced to using research about Rheumatic Disease.... Continue Reading →
I'm honored to be a part of the 4th annual RA blog week. Today's prompt is: Mindfulness – What does mindfulness mean to you and how can it help as we live with our autoimmune condition? About 10 years ago, I learned about a Mindfulness course offered through the Myrna Brind Center at Thomas Jefferson Hospital... Continue Reading →
I am proud to participate in the 4th annual RA Blog Week. Thanks to Rick Phillips for organizing this event every year. Day 1 Prompt: The Medicine – Patients with autoimmune disease often are not treated well by Doctors and Pharmacists when we ask for or receive prescription pain medicine. What has been your experience? Share... Continue Reading →
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