Warning: Over use of CAP LOCKS and a full-on rant inside….

Today was a terrible, horrible, no good, very bad day (extra points if you know that book!)….well, I may be a little melodramatic, but my day sucked the life out of me.  It started with about 2.5 hours of sleep.  I had to use my crutches a lot yesterday while traveling home from my holiday getaway.  We were stuck in a traffic jam, so I stopped at a rest stop to grab food and walk Georgia.  Walking a dog while on crutches is not easy.  I made it home and had to unload my car (with the help of my neighbor).  Now having autoimmune arthritis while trying to travel and pack/unpack is difficult enough. Add in the broken non-weight bearing foot and subsequent boot AND it’s extra-specially difficult.  I was exhausted, but was unable to sleep because I hurt. ALL. OVER.  The kind of hurt that made it impossible to sleep.  When my alarm went off, I was surprisingly not too exhausted.  A giant cup of coffee and I was on my way.

Work flew by and then it was time for a doctor appointment.  I scooted myself out of the building and into the POURING rain. img_1411***For those of you who have’t had the chance to experience it, knee scooters and pouring rain do not a good combination make (but I digress.)  I stood in the pouring rain trying to fit the scooter into my car, then hopped on one foot to my driver’s seat.  The parking lot floods, so my good foot was soaked.  After a 40 minute long commute, I reached my destination….and then the fun really started.

It was still pouring rain when I arrived at my handicapped accessible doctor’s office. I didn’t think I would have trouble getting myself in and out of the building, but I was wrong.   I can honestly say that my experience using a mobility device has been eye opening.

If you have ever pushed a wheelchair, you’ll already know that they get caught on curbs, floor-based door frames, elevator frames, and carpets/ weather runners.  Scooters are just as bad, except you have the added potential of being tossed over the handlebars if you hit the brakes too hard or something slams to you a stop (like a curb).  So imagine scooting along in the pouring rain then slamming to a sudden halt because the scooter can’t make it over the flat legos of death (really known as truncated domes that are ADA required to alert visually impaired people they are coming to the cross walk)

1200px-Truncated_domes
Flat legos of death

at the end of the handicapped accessible ramp.  While these truncated domes (honestly, don’t you prefer them to be called flat legos of death??  Just me?  I digress again.)  Being relatively new to this mobility game, I hit this portion of the sidewalk (in the pouring rain) and almost broke my neck.  Not only did the bumps slam me to a sudden, yet shaky halt, the rain soaked square was slippery.  I was SO unprepared for this “safety” sidewalk feature.
By the time I got back to my car, I was physically and mentally drained. (All this after having another suspicious mole removed by my dermatologist!!)  Seriously, everything is just THAT much more difficult when you can’t walk!!!  It’s exhausting and it makes me want to toilet paper every car that dares to park in a handicapped accessible parking spot.  The general public has NO understanding of how difficult it is to maneuver when disabled.  I thought I knew, but today proved, to me, that I had NO idea. Three more weeks until I can hopefully walk again or better yet, lose the boot!  My temporary use of a mobility device will be short lived and for that I am both humbled and grateful.

When I finally arrived at home, I walked in to a flood (more like a pee puddle, but again, melodrama is my middle name today) caused by my diabetic dog who just couldn’t hold it until I got home from work/doctor’s appointment.  She is normally very good, but I’m sure her first day with me following our 5 day break had her off schedule.  Cleaning up a river a pee with a non-weight bearing broken foot is truly not delightful. I don’t recommend it at all. I still haven’t carried the trash bags outside because I just can’t move any more this evening.

Thanks for tolerating my ranty-rant, my digressions, and my overuse of ALL CAPS in this blog.  I am now on my couch watching Elf (because I really need some Buddy in my life after my terrible, horrible, no good, very bad day).

img_1419
It’s snuggle time mom!!

Georgia keeps pulling the laptop back to get my attention, so I guess it’s snuggle time, too.   I’m done being angsty and miserable.  Time to move on.  I’m going to hang out with Buddy and get some happy back in my life before going to bed.  Wish me luck that I achieve sweet dreams and not end up a cotton-headed ninny muggins tomorrow.

Be well friends.

 

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Kelly holds masters degrees in both Special Education and Speech-Language Pathology. She works full-time as a speech-language pathologist in both a public school setting and as an adjunct faculty member at a university, in Philadelphia, PA. She specializes in both autism and augmentative/alternative communication and took her skills to Uganda, Africa to start a special needs program for disabled children living in an orphanage in 2011. Kelly began experiencing symptoms of autoimmune arthritis in 1984 (while in her teens) but wasn’t officially diagnosed with autoimmune arthritis until 2001. Her first diagnosis was Sjogren’s syndrome. Eventually her diagnosis was changed to sero-negative RA and now Polyarticular Spondlyoarthropathy. She also manages thyroid disease (resulting from Graves Disease), fibromyalgia, renin-deficient hypertension, and disseminated superficial actinic porokeratosis (DSAP) on a daily basis. Kelly connected with other autoimmune arthritis patients via social media in 2008. She began volunteering with the “Buckle Me UP! Movement”, which evolved into the International Autoimmune Arthritis Movement (IAAM) beginning in 2009. Then became a cofounder of IFAA in 2013. She has represented the ACR on Capitol Hill as an Advocate for Arthritis, was a finalist in Wego Health’s Health Activist Hero awards in 2014, and speaks at various healthcare conferences as a patient advocate in the Philadelphia area.

5 thoughts on “Warning: Over use of CAP LOCKS and a full-on rant inside….

  1. Kelly I went head over heels on one of those scooters because of an engineered seam in our garage floor. I went head over heals and tore up my knee and my one good foot. Damn thsoe things are ugly and i get the Lego’s at the end of the handicapped ramps. I am with you on hating those things.

    Grrrr.

    Ok, I am goign to put away my caps lock.

    peace and lack of caps lock to you and Georgia!!

    Liked by 1 person

      1. Oh we did. It was both quiet and fun. We actually had dinner with (wait for it) our youngest sons in-laws. A three year tradition that works out well and we get to share the grandson.

        Oh and his parents come as well, I think ?

        Liked by 1 person

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