I'm honored to be a part of the 4th annual RA blog week. Today's prompt is: Mindfulness – What does mindfulness mean to you and how can it help as we live with our autoimmune condition? About 10 years ago, I learned about a Mindfulness course offered through the Myrna Brind Center at Thomas Jefferson Hospital... Continue Reading →
I'm proud to be participating in RA Blog week for the 4th year! It's always an honor to be included. Today's blog prompt is: Tips – How do you stay fit, cope with stress, relax, or capitalize on a great day. Tell us your secrets for the best life possible......But I'm opting out and doing... Continue Reading →
I am proud to participate in the 4th annual RA Blog Week. Thanks to Rick Phillips for organizing this event every year. Day 1 Prompt: The Medicine – Patients with autoimmune disease often are not treated well by Doctors and Pharmacists when we ask for or receive prescription pain medicine. What has been your experience? Share... Continue Reading →
In addition to my autoimmune arthritis and other chronic illnesses, I've written about my skin issues. Right before my diagnosis of Sjogren's syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis). I basically get these little circles on my skin. They get hard and sometimes flake. Over time, they... Continue Reading →
I love summer. I didn't have the best summer, but regardless, I always hate seeing it come to an end. Today is also Labor Day. A day in which we, in the United States, honoring contribution and achievements of American workers. I am still able to work with my chronic illnesses. It's far from easy.... Continue Reading →
I've been neglecting my blog this past month to focus on a book I was writing. I had previously written 4-5 drafts before finally settling in a banging out a complete draft that I didn't hate this summer. I sent it to an editor and just uploaded my book to be published. It's been a... Continue Reading →
I love music. I love concerts. The more my disability progresses, the harder it is for me to attend concerts. See I'm one of those people in the middle. I definitely struggle with mobility, but I'm not truly in need of a wheelchair. I'm a "need-a-cane-some-of-the-time" kind of person. Concerts tend to be in big... Continue Reading →
I've written many times about my fear of losing health insurance due to my pre-existing conditions. Recently, the Justice Department has decided to not defend the Affordable Care Act in court. Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions. According the... Continue Reading →
I'm the type of rheumatology patients who has "normal" blood work. My vitamin D is typically wonky but everything else come back clear. No explanation as to why I'm so tired. No explanation for my swollen joints. Now don't get me wrong, I DON'T WANT anything to be wrong, I just want an explanation. I... Continue Reading →
Yesterday was stressful. I decided to get my nails done after work. Before heading to the salon, I stopped by the house to walk the dog and give her some medication. It was too early to feed her and give her insulin, but I figured I'd only be gone for 2 hours, so I had... Continue Reading →
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