Four more weeks…

I had my follow up for my broken foot (AKA 5th metatarsal fracture) today.  I’ve been trying my best to not bear weight on my foot since 11/1/2018.  The past 46 days have been difficult.  I’ve tried my best to not walk.  I admit, it’s so hard in my stair-filled house, so there are times when […]

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A scary good day…

On Monday, I had my annual mammogram.  The following day, I received a message that there was a problem and I needed to come back.  I missed the call and didn’t get the message until late, so I had to wait until this morning to call back.  The way the message sounded, there was an […]

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It’s time to walk, I mean TALK…

How many times have I donated to charity walks? About 500 in the past few years, I would guess.  I have a hard time walking myself, so I always feel the need to support others who can do so.  As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we’ve often talked […]

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I hope you laugh…

I spend time with a lot of kids.  In my work and in my life, I am surrounded by kids a lot. The other day, a kid came up to me and our conversation went something like this: Kid: I feel so bad for you. Me: Why? Kid: I read your book. Me: (thinking kid […]

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RA Blog Week 2018: Day 5 (Another Wildcard): Politics

Honored to be a part of this 4th annual RA Blog Week 2018.  Thanks to Rick Phillips for organizing and inviting me to participate.  Today’s topic is not one I was able to respond to, so I decided to do another wild card.  Here is today’s prompt: Politics – Health is always a hot item for […]

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RA Blog Week 2018: Day 4, Research…

I’m proud to be a part of the 4th annual RA blog week.  Today’s prompt:  Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced to using research about Rheumatic Disease. […]

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RA Blog week 2018: #3 Mindfulness…

I’m honored to be a part of the 4th annual RA blog week.  Today’s prompt is: Mindfulness – What does mindfulness mean to you and how can it help as we live with our autoimmune condition? About 10 years ago, I learned about a Mindfulness course offered through the Myrna Brind Center at Thomas Jefferson Hospital […]

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