A little bit of this, a little bit of that…

It’s been a while since I had time to blog.  So much to write about. Working full-time Patient Advocacy A milestone birthday So let’s start in September.  I had spent the majority of my summer with serious gastroenteritis.  I swear I have never experienced stomach issues like that in my life.  I went through test […]

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With a hope and a flare….

This past week, I’ve been dealing with one of the worst flare ups of my disease in years.  I say the word “disease” because honestly, no one seems to know for sure what I have.  Sometimes I’m told I have rheumatoid arthritis.  Other times, I’m told I have psoriatic arthritis or spondyloarthopathy.  All I know….is […]

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Who knows best…

Insurance is a blessing and a curse in my life.  I’m grateful to have coverage, but so frustrated a the antiquated system of step therapy that they industry still holds valid. I’ve written before about suffering for 7 years before finding a biologic drug that made me feel somewhat human again.  Why?  Because I had […]

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A little bit more…

I may have become cocky and over confident in my ability to tolerate pain.  On an average day, my fingers, elbows, shoulders, hips, lower back, knees, ankles and feet hurt. A lot.   Each day starts out with almost all my joints revolting when I try to stand up in the morning. It eases up […]

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You ain’t no copper penny…

Recently, I’ve been going through a lot a stress.  Health, family, pets, household issues, etc….if I wasn’t for bad luck, I’d seriously have none.  On top of it all, I’ve gained a ton of weight from both inactivity due to my broken foot and stress eating.  Then I ended up getting sick.  The kind of […]

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Four more weeks…

I had my follow up for my broken foot (AKA 5th metatarsal fracture) today.  I’ve been trying my best to not bear weight on my foot since 11/1/2018.  The past 46 days have been difficult.  I’ve tried my best to not walk.  I admit, it’s so hard in my stair-filled house, so there are times when […]

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A scary good day…

On Monday, I had my annual mammogram.  The following day, I received a message that there was a problem and I needed to come back.  I missed the call and didn’t get the message until late, so I had to wait until this morning to call back.  The way the message sounded, there was an […]

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It’s time to walk, I mean TALK…

How many times have I donated to charity walks? About 500 in the past few years, I would guess.  I have a hard time walking myself, so I always feel the need to support others who can do so.  As the cofounder of a non-profit (International Foundation for Autoimmune & Autoinflammatory Arthritis), we’ve often talked […]

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I hope you laugh…

I spend time with a lot of kids.  In my work and in my life, I am surrounded by kids a lot. The other day, a kid came up to me and our conversation went something like this: Kid: I feel so bad for you. Me: Why? Kid: I read your book. Me: (thinking kid […]

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RA Blog Week 2018: Day 5 (Another Wildcard): Politics

Honored to be a part of this 4th annual RA Blog Week 2018.  Thanks to Rick Phillips for organizing and inviting me to participate.  Today’s topic is not one I was able to respond to, so I decided to do another wild card.  Here is today’s prompt: Politics – Health is always a hot item for […]

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