RA Blog Week 2018: Day 5 (Another Wildcard): Politics

Honored to be a part of this 4th annual RA Blog Week 2018.  Thanks to Rick Phillips for organizing and inviting me to participate.  Today’s topic is not one I was able to respond to, so I decided to do another wild card.  Here is today’s prompt: Politics – Health is always a hot item for […]

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RA Blog Week 2018: Day 4, Research…

I’m proud to be a part of the 4th annual RA blog week.  Today’s prompt:  Research – Do you incorporate research into your disease management? If you do explain how and what difference it has made. If not discuss why not. Help us understand any barriers you have experienced to using research about Rheumatic Disease. […]

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RA Blog week 2018: #3 Mindfulness…

I’m honored to be a part of the 4th annual RA blog week.  Today’s prompt is: Mindfulness – What does mindfulness mean to you and how can it help as we live with our autoimmune condition? About 10 years ago, I learned about a Mindfulness course offered through the Myrna Brind Center at Thomas Jefferson Hospital […]

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RA Blog Week #2: Because…

I’m proud to be participating in RA Blog week for the 4th year!  It’s always an honor to be included. Today’s blog prompt is:  Tips – How do you stay fit, cope with stress, relax, or capitalize on a great day. Tell us your secrets for the best life possible……But I’m opting out and doing […]

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As the list goes on…

In addition to my autoimmune arthritis and other chronic illnesses, I’ve written about my skin issues. Right before my diagnosis of Sjogren’s syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis).  I basically get these little circles on my skin. They get hard and sometimes flake.  Over time, they […]

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So long summer…

I love summer.  I didn’t have the best summer, but regardless, I always hate seeing it come to an end.  Today is also Labor Day.  A day in which we, in the United States, honoring contribution and achievements of American workers.  I am still able to work with my chronic illnesses.  It’s far from easy. […]

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27 and counting…

Tomorrow marks my 27th year in a classroom.  I’ve had many different roles over the years.  My current role is as an speech-language pathologist in a public school system.  I love what I do.  Every job has it’s positive and negative aspects.  I love my helping my students become effective communicators, but I despise the […]

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Patients losing patience…

I’ve written many times about my fear of losing health insurance due to my pre-existing conditions.  Recently, the Justice Department has decided to not defend the Affordable Care Act in court.  Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions.  According the […]

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It’s in my blood…

I’m the type of rheumatology patients who has “normal” blood work.  My vitamin D is typically wonky but everything else come back clear.  No explanation as to why I’m so tired.  No explanation for my swollen joints.  Now don’t get me wrong, I DON’T WANT anything to be wrong, I just want an explanation. I […]

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When being neurotic is a good thing…

Yesterday was stressful.  I decided to get my nails done after work.  Before heading to the salon, I stopped by the house to walk the dog and give her some medication.  It was too early to feed her and give her insulin, but I figured I’d only be gone for 2 hours, so I had […]

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