I'm exhausted. Utterly exhausted. I shouldn't be. I'm not working. I'm on vacation for two weeks, but I have no energy. My body aches. My bones are tired. I feel 80 years old. I don't like it. This was going to be my summer of getting stuff done. I was going to write my... Continue Reading →
I've been neglecting my blog this past month to focus on a book I was writing. I had previously written 4-5 drafts before finally settling in a banging out a complete draft that I didn't hate this summer. I sent it to an editor and just uploaded my book to be published. It's been a... Continue Reading →
Every year, WegoHealth has their annual Health Awards. There are various categories that honor Patient Advocates/Leaders who are active on various social media platforms. I'm so touched and honored to say that I have been nominated. This year, people were kind enough to nominate me in two categories. Click on the badges to vote for... Continue Reading →
I love music. I love concerts. The more my disability progresses, the harder it is for me to attend concerts. See I'm one of those people in the middle. I definitely struggle with mobility, but I'm not truly in need of a wheelchair. I'm a "need-a-cane-some-of-the-time" kind of person. Concerts tend to be in big... Continue Reading →
I've written many times about my fear of losing health insurance due to my pre-existing conditions. Recently, the Justice Department has decided to not defend the Affordable Care Act in court. Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions. According the... Continue Reading →
I'm the type of rheumatology patients who has "normal" blood work. My vitamin D is typically wonky but everything else come back clear. No explanation as to why I'm so tired. No explanation for my swollen joints. Now don't get me wrong, I DON'T WANT anything to be wrong, I just want an explanation. I... Continue Reading →
I originally wrote this piece as a part of Rheumatoid Arthritis Blog Week. I decided to redo it a bit for World Autoimmune Arthritis Day. I often need to remind myself of all I have been through with this disease. Also, to show others that I took me almost 30 years to get any sort... Continue Reading →
I was recently asked to write for the #spoonie group The Unchargeables. This is my first piece for them. Check them out. There are some great blogs on their site. Social Media: It's a Stranger Thing... The recent security issues on Facebook have a lot of people wondering if they should delete their accounts. I... Continue Reading →
I recently posted about my big diet change. For about one month, I stuck to it like glue. I had one cheat day that clocked in around 2200 calories, but overall, I stuck to my plan of 1200 calories or less. I removed gluten, dairy, and salt. I also limited carbs and sugar. I was... Continue Reading →
Well, it's been a week on the "get-healthy-by-removing-everything-you-love-from-your-diet" diet. I've stuck to a reduced salt, low carb, low sodium and mostly gluten-free diet (I didn't realize one of the meal bars I got had gluten and I had 2 over the past week). Just to refresh, I decided to try a significant diet change to... Continue Reading →
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