March is both Autoimmune Disease Awareness and Women's History month. To honor both, I'm highlighting female advocates who have inspired me, motivated me, and befriended me. In this third issues, I've decided to feature three women that make me want to be a better advocate. First up is Kerry Wong from Float like a Butterfly.... Continue Reading →
March 2023 is both Autoimmune Disease Awareness and Women's history month. I've decided to combine these two movements and highlight female patient leaders/advocates who have inspired me along my journey with my journey with autoimmune arthritis. First up is a woman who helped everyone living with chronic illness learn how to explain their disease to... Continue Reading →
I hate the month of March. Why? As an educator, it's the longest month of the school year that typically has no holidays (other than Easter from time to time) and lots of lousy weather. In the Northeast of the United States, the skies are gray, the weather is cold and damp, and my disease... Continue Reading →
I was scrolling through facebook today and saw a post for "walk 50 miles with your dog this month" for XYZ charity. I looked at my dog and said, "When this new medication makes me feel better, we can do this." A friend asked me to go to a large mall in the area, and... Continue Reading →
A few weeks ago, I wrote about taking time to focus on getting healthier. My pain levels have been excruciating. So much so, that I requested an x-ray to make sure nothing is wrong inside (other than what I know is already wrong). I'm hoping to get that done next week. Until then, I thought... Continue Reading →
Someone recently asked me if I wrote an "advice blog". The answer is NOPE. As My Joints turn is more of a journal of living with chronic illness and debilitating pain. I share my experience with doctors, medication, treatments, and daily life. I am not a medical professional, so any "advice" I give would be... Continue Reading →
I used to joke that if I ever woke up without pain, I'd think I was dead. I should clarify that I often wake up without pain, but as soon as I attempt to move... YOWZA This past summer, my diagnosis changed from rheumatoid arthritis to non-radiographic ankylosing spondylitis. My back has been killing me... Continue Reading →
tWitch's death has spread around the globe and rocked many. He shone a light on your screens via television and social media. His life seemed golden and perfect with a beautiful family and successful career. Through this all, I've seen some posts where people claimed he was "selfish" and he had "so many options". These... Continue Reading →
The holidays can be both enjoyable and stressful when you are dealing with a chronic illness. I've learned that boundaries are important. I'm not always the best at enforcing my boundaries, but after being sick for the past four months, I need to be extra cautious with my health. 🎄You may want to do everything... Continue Reading →
I've lived with Chronic illness for over 20 years. During that time, I admit, I haven't always been good at communicating what I needed from friends and family. Over the years, I've learned how to set boundaries and ask for what I need. The issue is, I've become more discerning of whom I choose to... Continue Reading →
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