I've completed the last loading dose of my newest bio similar infusion drug, Inflectra. I know most of my family and friends are waiting to know....do I feel better. That is a tricky question to answer. I met with my rheumatologist and had to have an answer to that very question. My answer: Maybe Not... Continue Reading →
I've been having a difficult time with my autoimmune arthritis. Firstly, I no longer know what to call my disease. I don't fit any definition completely. Do I have symptoms of Rheumatoid Arthritis? Yes. Do I have symptoms of Lupus? Yes. Do I have symptoms of Psoriatic Arthritis, Ankylosing Spondylitis, Spondylitis, and Non Radial Graphic... Continue Reading →
A few years ago, I began taking a drug called Kevzara. This drug, for me, was a miracle. For the first time in years, I saw my ankles on a consistent basis. My swelling decreased significantly and I felt pretty good. At one point, I was walking 5 miles a day, losing weight, and feeling... Continue Reading →
April is always a difficult month for me. It is the anniversary of several event that changed my life forever. Some good, most bad. Regardless, every year, I cringe when April rolls around. My cousin Chris died on 4/20/2011. He was 34. He was the most anti-social social person I ever met. Brilliant man with... Continue Reading →
This past few weeks I've been dealing with a horrible rheumatoid arthritis flare. It started after the holidays and has caused me to miss time from work, avoid get togethers, and greatly altered my life. I've also been rekindling my affair with my trusty cane. Basically, nothing fun. Last year, I felt like my meds... Continue Reading →
It's been a hot minute since I've posted a blog. There are 15 blogs in my drafts that I just couldn't finish. I feel like I lost my voice for a bit. I've lived in pain for over 20 years. This past year; however, I feel like my disease is out of control. Medication barely... Continue Reading →
James Conway 1936-2020 On November 10, 2020, my father, James Conway, died from complication caused by COVID19. Those complications included sepsis, pneumonia, urinary tract infection. Over the past year, I have had people ask me, "Did your dad have pre-existing complications?" Of course he did, he was 84. My dad had various health conditions, but... Continue Reading →
I've been riding a low wave lately. I'm coming up on the year anniversary of losing my dad to COVID19. I continue to have feelings of anger, heartache, disbelief, and utter grief. Honestly, most days, I struggle to get out of bed. I took a huge chunk of 2021 off to work on myself. To... Continue Reading →
Today, I got my booster vaccine shot. I tried signing up for a "booster" but all of the websites only asked for initial or second dose requests. I figured if I wasn't able to get the shot today, I could at least figure out where/how to get it. I spoke with the pharmacy assistant who... Continue Reading →
My blog has been reached people in 89 countries so far. I am always a bit shocked when I see the "hits" my blog gets that are outside of the United States. It kind of blows me away. I started this blog eleven years ago as a way to cope with feelings of isolation and... Continue Reading →
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