I've lived with Chronic illness for over 20 years. During that time, I admit, I haven't always been good at communicating what I needed from friends and family. Over the years, I've learned how to set boundaries and ask for what I need. The issue is, I've become more discerning of whom I choose to... Continue Reading →
I haven't blogged in a while. Recovering from pneumonia was difficult, then I caught COVID..... After 2 years and 8 months of avoiding the dreaded virus, I tested positive. I had a mild case. Bad cold without a fever. Due to my immunocompromised status, my doctor prescribed Paxlovid, the antiviral medication. Although my COVID symptoms... Continue Reading →
In 2019, I finished out my school year, and traveled to visit my dad for father's day. I was very run down and felt horrible, but attributed it to an autoimmune arthritis flare. I became deathly ill with vomiting/diarrhea and a high fever. I had pneumonia. Fast forward to my first day of school (with... Continue Reading →
It's been a hot minute since I've posted a blog. There are 15 blogs in my drafts that I just couldn't finish. I feel like I lost my voice for a bit. I've lived in pain for over 20 years. This past year; however, I feel like my disease is out of control. Medication barely... Continue Reading →
My health has been a roller coaster lately. This past week my disease is basically out of control. I had to break out my cane because walking and balance were an issue. I woke up Friday morning feeling exhausted, but I got out of bed and forced myself to drive to work. I lasted 1.5... Continue Reading →
I lost my dad after a battle with COVID-19 on November 10. Twenty-two days later, my Uncle also passed after being diagnosed with COVID a day earlier. Both were senior citizens. Both had pre-existing conditions. Neither one of them deserved to die the way that they did. Alone without the comfort of loved ones by... Continue Reading →
Life has been stressful. I'm dealing with not only my job (online), flares, and a serious issue with my elderly parents. Stress is intense and it is taking a toll on me physically and emotionally. It's always a fine balance in these situations. Trying to self-care while caring for others. Trying to stay focused on... Continue Reading →
Since the Coronavirus Quarantine, my body has been on a high. I've been feeling good. Working from home has greatly improved my joint pain. It's something my rheumatologist has been asking me to do for a while....work less. Although, I'm not working less, per se, I am working with my legs up, less walking, and... Continue Reading →
I am active in the patient community so I know a lot of people who are on disability due to chronic illness. Their age, gender and race all vary, but the one thing they have in common? The majority of them wish they could still work. The majority of them are dirt poor, especially if... Continue Reading →
I was recently interviewed for a project. I was asked to describe myself. So I talked about my career as a speech language pathologist, educator, patient, patient advocate, and writer. I described my life as a single woman living with multiple chronic illnesses and how I take care of a dog with more chronic illnesses... Continue Reading →
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