Slide and twist….

I used to joke that if I ever woke up without pain, I'd think I was dead. I should clarify that I often wake up without pain, but as soon as I attempt to move... YOWZA This past summer, my diagnosis changed from rheumatoid arthritis to non-radiographic ankylosing spondylitis. My back has been killing me... Continue Reading →

Stop asking me to dance…

I've lived with Chronic illness for over 20 years. During that time, I admit, I haven't always been good at communicating what I needed from friends and family. Over the years, I've learned how to set boundaries and ask for what I need. The issue is, I've become more discerning of whom I choose to... Continue Reading →

So I did a thing….or two…

I haven't blogged in a while. Recovering from pneumonia was difficult, then I caught COVID..... After 2 years and 8 months of avoiding the dreaded virus, I tested positive. I had a mild case. Bad cold without a fever. Due to my immunocompromised status, my doctor prescribed Paxlovid, the antiviral medication. Although my COVID symptoms... Continue Reading →

Oops, I did it again…

In 2019, I finished out my school year, and traveled to visit my dad for father's day. I was very run down and felt horrible, but attributed it to an autoimmune arthritis flare. I became deathly ill with vomiting/diarrhea and a high fever. I had pneumonia. Fast forward to my first day of school (with... Continue Reading →

One step at a time…

It's been a hot minute since I've posted a blog. There are 15 blogs in my drafts that I just couldn't finish. I feel like I lost my voice for a bit. I've lived in pain for over 20 years. This past year; however, I feel like my disease is out of control. Medication barely... Continue Reading →

How can I assist you?

My health has been a roller coaster lately. This past week my disease is basically out of control. I had to break out my cane because walking and balance were an issue. I woke up Friday morning feeling exhausted, but I got out of bed and forced myself to drive to work. I lasted 1.5... Continue Reading →

Overwhelmed…

I lost my dad after a battle with COVID-19 on November 10. Twenty-two days later, my Uncle also passed after being diagnosed with COVID a day earlier. Both were senior citizens. Both had pre-existing conditions. Neither one of them deserved to die the way that they did. Alone without the comfort of loved ones by... Continue Reading →

LAME JOINTS and social expectations….

Life has been stressful. I'm dealing with not only my job (online), flares, and a serious issue with my elderly parents. Stress is intense and it is taking a toll on me physically and emotionally. It's always a fine balance in these situations. Trying to self-care while caring for others. Trying to stay focused on... Continue Reading →

Crash…

Since the Coronavirus Quarantine, my body has been on a high. I've been feeling good. Working from home has greatly improved my joint pain. It's something my rheumatologist has been asking me to do for a while....work less. Although, I'm not working less, per se, I am working with my legs up, less walking, and... Continue Reading →

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