Long weekend, nothing accomplished

So MLK weekend of 2012 is coming to an end.  This weekend, I had planned to clean my home, get organized, etc.  Did I accomplish any of it?  Not really.  Am I mad at myself?  Yes.  I feel like during the work week, I am so exhausted by the time I get home.  Then on the weekend….I completely crash.  I need to find a better middle ground.  I’m hopefully starting a new job in a few weeks.  The start time will be 40 minutes earlier than I currently start now.  I need to get myself into a more regular sleep routine.  I’m exhausted all the time but can’t sleep once I get myself in bed.  Once I do sleep, it’s difficult to get up.  I’ve read all of the literature on what to do and not to do before bed.  I try to stick to it but either can’t shut my mind off or can’t turn the pain off.  I’ve tried Ambien but quite frankly, the crazy dreams made me feel like I was wide awake all night long.  Not rested at all.  I live alone and don’t really want to be a sleep walker on Ambien by myself. Change is good, right?  Let’s see if I can improve my overall health starting with better sleep.

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Kelly holds masters degrees in both Special Education and Speech-Language Pathology. She works full-time as a speech-language pathologist in both a public school setting and as an adjunct faculty member at a university, in Philadelphia, PA. She specializes in both autism and augmentative/alternative communication and took her skills to Uganda, Africa to start a special needs program for disabled children living in an orphanage in 2011. Kelly began experiencing symptoms of autoimmune arthritis in 1984 (while in her teens) but wasn’t officially diagnosed with autoimmune arthritis until 2001. Her first diagnosis was Sjogren’s syndrome. Eventually her diagnosis was changed to sero-negative RA and now Polyarticular Spondlyoarthropathy. She also manages thyroid disease (resulting from Graves Disease), fibromyalgia, renin-deficient hypertension, and disseminated superficial actinic porokeratosis (DSAP) on a daily basis. Kelly connected with other autoimmune arthritis patients via social media in 2008. She began volunteering with the “Buckle Me UP! Movement”, which evolved into the International Autoimmune Arthritis Movement (IAAM) beginning in 2009. Then became a cofounder of IFAA in 2013. She has represented the ACR on Capitol Hill as an Advocate for Arthritis, was a finalist in Wego Health’s Health Activist Hero awards in 2014, and speaks at various healthcare conferences as a patient advocate in the Philadelphia area.

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