Today was a terrible, horrible, no good, very bad pain day. Why? Because my pain level is almost unbearable. My fatigue level is almost overpowering. It's almost amusing how hard I work just to be able to keep working. Over the years, I've spent so much time and money trying new therapies to reduce some my symptoms while increasing... Continue Reading →
I love having the opportunity to be apart of RA blog week. Not only does it encourage me to focus on my experiences with RA, but it also gives me a chance to read blogs by other patients that give me great perspectives Thanks to Rick Phillips at RADiabetes for the invitation. Some blogs that I really... Continue Reading →
I am reblogging this for Day 4 of #RABlog week. Today’s topic is “The Pain of Pain Meds”. I wrote in February and think it fits todays topic. To read the reblog click on “As my joints turn”. To learn more on this topic, check out : http://radiabetes.com/blog_week16/day4.html
Let me explain…..
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Nine years ago: I remember the day my rheumatologist recommended that I begin taking a biologic drug. I freaked out. I felt like it meant that my disease was getting so bad that I had no choice. I knew little about biologic drugs and thought it was a "last resort". This was before I knew... Continue Reading →
I've written previously on this topic. I became a patient advocate in 2009. From that point, I began to learn the ins and outs of insurance, medicine, pharmaceutical companies, doctors, etc. I previously had no interest in learning about these things, but like most people with chronic illness, I learned thatI had no choice. Prior... Continue Reading →
I am proud to participate in the 2nd Annual RA Blog week. m When I was 14 years old, I woke up one morning and my knee hurt. Hurt to walk, hurt to bend, and even ached when I was sitting down. Funny thing was that I didn’t have an accident, I didn’t bang it.... Continue Reading →
It took me almost 20 years to get a diagnosis. My symptoms started at age 14 and came and went throughout my teens and 20's. Finally, in my 30's, the symptoms stayed and completely debilitated me. Most of the time, autoimmune arthritis diseases are chronic yet invisible diseases. There is always the phrase "But you don't... Continue Reading →
This blog was nominated for Wego Health Activist Award this year. I was also nominated for "Best Kept Secret"...shhhh! lol Wego is a fabulous organization that links health care advocates with patients via social media. They have an annual award ceremony to honor "Health Activists who enrich the lives of others by sharing their experience,... Continue Reading →
A few years ago, I learned about the American College of Rheumatology (ACR) event called "Advocates for Arthritis". The ACR ask people from all over the US who live with arthritis to apply to attend the event held in Washington DC. It is an "annual event that brings together rheumatology professionals and patients to advocate on... Continue Reading →
There is a new clothing craze that is popping up on social media called LuLaRoe . I admit in the beginning, I was not liking the crazy patterns. I knew the leggings were fabulous, but I doubted everything else. A friend got me to join her online party and well....I went CARAAAZEEEEEE seeing the clothes for... Continue Reading →
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