*** Updated on 9/28/2015: This is my Wildcard Submission for #RABlog week Day 5. One of the topics was I feel supported, so I am using this old blog to share. I think it fits the topic of feeling supported. I still feel this way. Hope you like it.Don't forget to check out the other... Continue Reading →
I've never been very confident in my appearance. My best feature (in my opinion) is my hands Seriously, that was always the one part of my body that I took a lot of pride in. Well, autoimmune arthritis has decided my vanity in that area needed to be squished. This is what my hands look like... Continue Reading →
Time. You always think you have plenty of it but when you live with autoimmune arthritis, time is not your friend. In order to make it to work in the morning, I have to set my clock an hour before I need to get up. Why? Because it takes me at least an hour to... Continue Reading →
I spoke at a pharmaceutical conference recently. They introduced me as a "Health Activist". One of the pharmaceutical reps asked me what made me decide to become a health activist. I wasn't sure how to answer because I don't really see myself as an "activist". After some though I said, "I realized health care had... Continue Reading →
My cousin died this week at the age of 36 from a pulmonary embolism. It was a shock. It is painful. She was a ray of light and a good human being. I did not know her well as a kid. She was 10 years younger me and on the side of my family that... Continue Reading →
I have taken a 2 year hiatus from blogging. Not that I was ever overly proficient but the last two years of my life have held many highs and lows. When I last posted, I was beginning a new biologic. It was a miracle. I saw my ankle for the first time in 7 or... Continue Reading →
The past few months have been difficult. I've had my medication fail on me. I had been taking Cimzia which I truly loved in the beginning, and it suddenly stopped working. To be fair, I quit taking Methotrexate in December. So I believe that the combo of both Cimzia & MTX were helping but my... Continue Reading →
I've been having a rough time with my autoimmune diseases lately. I'm chronically tired, with swollen and hot joints that seem to move around my body without much rhyme or reason. It's exhausting. My rheumy wants me to start taking Enbrel twice a week. I'm really not sure that Enbrel is the biologic for me.... Continue Reading →
When people look at me they never see a person who is "sick". I'm often told, "But you don't look sick!". Who suffering from an autoimmune disease hasn't heard that statement a few hundred times. I try to prevent people from seeing how hard life with my body has been lately. It's been so easy... Continue Reading →
I was at work 5 days ago and my hands suddenly swelled, and I felt odd. I woke up the next morning feeling flu-like and out of sorts. I called off from work and went back to bed. I had every intention of going back to work the next day. I thought it was just... Continue Reading →
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