In addition to my autoimmune arthritis and other chronic illnesses, I've written about my skin issues. Right before my diagnosis of Sjogren's syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis). I basically get these little circles on my skin. They get hard and sometimes flake. Over time, they... Continue Reading →
I love summer. I didn't have the best summer, but regardless, I always hate seeing it come to an end. Today is also Labor Day. A day in which we, in the United States, honoring contribution and achievements of American workers. I am still able to work with my chronic illnesses. It's far from easy.... Continue Reading →
I wrote earlier this week about starting my 27th year in the field of education. I'm a speech therapist. You wouldn't think a speech therapist would be on her feet lot, but I work in schools and what do schools have?? LONG hallways and multiple flights of stairs. I also work a part time job... Continue Reading →
I'm exhausted. Utterly exhausted. I shouldn't be. I'm not working. I'm on vacation for two weeks, but I have no energy. My body aches. My bones are tired. I feel 80 years old. I don't like it. This was going to be my summer of getting stuff done. I was going to write my... Continue Reading →
I've been neglecting my blog this past month to focus on a book I was writing. I had previously written 4-5 drafts before finally settling in a banging out a complete draft that I didn't hate this summer. I sent it to an editor and just uploaded my book to be published. It's been a... Continue Reading →
Every year, WegoHealth has their annual Health Awards. There are various categories that honor Patient Advocates/Leaders who are active on various social media platforms. I'm so touched and honored to say that I have been nominated. This year, people were kind enough to nominate me in two categories. Click on the badges to vote for... Continue Reading →
I've written many times about my fear of losing health insurance due to my pre-existing conditions. Recently, the Justice Department has decided to not defend the Affordable Care Act in court. Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions. According the... Continue Reading →
I'm the type of rheumatology patients who has "normal" blood work. My vitamin D is typically wonky but everything else come back clear. No explanation as to why I'm so tired. No explanation for my swollen joints. Now don't get me wrong, I DON'T WANT anything to be wrong, I just want an explanation. I... Continue Reading →
I originally wrote this piece as a part of Rheumatoid Arthritis Blog Week. I decided to redo it a bit for World Autoimmune Arthritis Day. I often need to remind myself of all I have been through with this disease. Also, to show others that I took me almost 30 years to get any sort... Continue Reading →
I was recently asked to write for the #spoonie group The Unchargeables. This is my first piece for them. Check them out. There are some great blogs on their site. Social Media: It's a Stranger Thing... The recent security issues on Facebook have a lot of people wondering if they should delete their accounts. I... Continue Reading →
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