As the list goes on…

In addition to my autoimmune arthritis and other chronic illnesses, I've written about my skin issues. Right before my diagnosis of Sjogren's syndrome, I was diagnosed with a benign skin disease called DSAP (disseminated superficial actinic porokerotosis).  I basically get these little circles on my skin. They get hard and sometimes flake.  Over time, they... Continue Reading →

So long summer…

I love summer.  I didn't have the best summer, but regardless, I always hate seeing it come to an end.  Today is also Labor Day.  A day in which we, in the United States, honoring contribution and achievements of American workers.  I am still able to work with my chronic illnesses.  It's far from easy.... Continue Reading →

27 and counting…

Tomorrow marks my 27th year in a classroom.  I've had many different roles over the years.  My current role is as an speech-language pathologist in a public school system.  I love what I do.  Every job has it's positive and negative aspects.  I love my helping my students become effective communicators, but I despise the... Continue Reading →

Summa, summa, summa time…

I've been neglecting my blog this past month to focus on a book I was writing.  I had previously written 4-5 drafts before finally settling in a banging out a complete draft that I didn't hate this summer.  I sent it to an editor and just  uploaded my book to be published.  It's been a... Continue Reading →

Times like these….

I love music.  I love concerts.  The more my disability progresses, the harder it is for me to attend concerts.  See I'm one of those people in the middle.  I definitely struggle with mobility, but I'm not truly in need of a wheelchair.  I'm a "need-a-cane-some-of-the-time" kind of person.  Concerts tend to be in big... Continue Reading →

Patients losing patience…

I've written many times about my fear of losing health insurance due to my pre-existing conditions.  Recently, the Justice Department has decided to not defend the Affordable Care Act in court.  Without defense the ACA could be determined to be unconstitutional, thus illuminating the protections put in place for people with pre-existing conditions.  According the... Continue Reading →

It’s in my blood…

I'm the type of rheumatology patients who has "normal" blood work.  My vitamin D is typically wonky but everything else come back clear.  No explanation as to why I'm so tired.  No explanation for my swollen joints.  Now don't get me wrong, I DON'T WANT anything to be wrong, I just want an explanation. I... Continue Reading →

‘Twas the night before a snowstorm…

** February 2019.  Another storm is coming and I feel it all over my body.  Be well my friends and stay warm and safe.  Enjoy one of my favorite posts. (March 2018) There is a HUGE snow storm coming tonight and tomorrow. Large amounts of wet, heavy snow is expected. The meteorologists are all over... Continue Reading →

Yesterday…..

Yesterday, I tried to be normal.  Yesterday, I tried to ignore my diseases.  Yesterday, I had fun.  Yesterday, I overdid things.  Today, I'm paying for it. Yesterday was a busy day.  I worked both jobs until 6:30, then joined a group of friends for a "Ladies night" at a  wine and paint place.  I knew... Continue Reading →

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