Wish me luck…

Living with chronic illness is tough. Living with chronic illness when your elderly parents are struggling medically is also tough. Toss in a pandemic and the stress and anxiety are at an all time high. Then my dad fell and broke his hip and ended up in a rehab hospital. I was lucky enough to […]

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LAME JOINTS and social expectations….

Life has been stressful. I’m dealing with not only my job (online), flares, and a serious issue with my elderly parents. Stress is intense and it is taking a toll on me physically and emotionally. It’s always a fine balance in these situations. Trying to self-care while caring for others. Trying to stay focused on […]

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Warning: Capacity depleted…

We all have those “Aha” moments. The moment when you learn about something that gives you clarity that you may or may not have known you were seeking. I had this kind of moment tonight and it is a moment that I truly needed. Let me explain, I’m miserable. Starting a virtual school year after […]

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Keep on Keeping on….

When the pandemic struck, my job became virtual. I started noticing how much better my body felt. Swelling was minimal, pain was present but minimal. I was walking 3 miles a day and feeling on top of the world. I wondered if my multiple jobs and long hours were draining my health. I work in […]

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Expect the unexpected

It’s been a while since I have written anything other than a text message and I am feeling rusty. The break was not intentional. I was recently diagnosed with vestibular migraines. What is a vestibular migraine? Basically, it’s vertigo. Fun right? Spinning, falling, and nausea. Good times. I’m still waiting to see a neurologist. I’m […]

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Crash…

Since the Coronavirus Quarantine, my body has been on a high. I’ve been feeling good. Working from home has greatly improved my joint pain. It’s something my rheumatologist has been asking me to do for a while….work less. Although, I’m not working less, per se, I am working with my legs up, less walking, and […]

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Unexpected goodness

This has been a crazy week. Watching the news and all the information regarding COVID-19. Of course the first known person in Pennsylvania happened to live about 4 miles from me. I heard as I was pulling into a gas station to fill up my tank. I found napkins before picking up the nozzle and […]

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To be or not to be….disabled.

I am active in the patient community so I know a lot of people who are on disability due to chronic illness. Their age, gender and race all vary, but the one thing they have in common? The majority of them wish they could still work. The majority of them are dirt poor, especially if […]

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Who am I??

I was recently interviewed for a project. I was asked to describe myself. So I talked about my career as a speech language pathologist, educator, patient, patient advocate, and writer. I described my life as a single woman living with multiple chronic illnesses and how I take care of a dog with more chronic illnesses […]

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