My therapist said to write instead of buying fancy purses to mask coping skills. So here I go: I placed my mom on hospice care because transporting her back and forth to doctors had become harder on her than the actual medical care she received once we got there. The reward simply wasn’t worth the... Continue Reading →
Hospice chaos, caregiver exhaustion, biologic crash, emotional overload, and survival mode—with just enough rest to breathe for a minute.
Every morning I wake up and think, today is going to be the day I feel better.Today will be the day I can function like a normal human being.Today is the day I will feel great. Then I get out of bed and realize the pain, fatigue, and general malaise are still there. It’s hard not to feel... Continue Reading →
The disability community is up in arms about statements made by a woman who is described as "American conservative author, talk show host, political commentator, and producer." I will NOT be identifying this woman by name because it's obvious she lives for these moments where she feels she is being unfairly vilified so she can... Continue Reading →
March is both Autoimmune Disease Awareness and Women's History month. To honor both, I'm highlighting female advocates who have inspired me, motivated me, and befriended me. In this third issues, I've decided to feature three women that make me want to be a better advocate. First up is Kerry Wong from Float like a Butterfly.... Continue Reading →
I was scrolling through facebook today and saw a post for "walk 50 miles with your dog this month" for XYZ charity. I looked at my dog and said, "When this new medication makes me feel better, we can do this." A friend asked me to go to a large mall in the area, and... Continue Reading →
The holidays can be both enjoyable and stressful when you are dealing with a chronic illness. I've learned that boundaries are important. I'm not always the best at enforcing my boundaries, but after being sick for the past four months, I need to be extra cautious with my health. 🎄You may want to do everything... Continue Reading →
I've lived with Chronic illness for over 20 years. During that time, I admit, I haven't always been good at communicating what I needed from friends and family. Over the years, I've learned how to set boundaries and ask for what I need. The issue is, I've become more discerning of whom I choose to... Continue Reading →
I haven't blogged in a while. Recovering from pneumonia was difficult, then I caught COVID..... After 2 years and 8 months of avoiding the dreaded virus, I tested positive. I had a mild case. Bad cold without a fever. Due to my immunocompromised status, my doctor prescribed Paxlovid, the antiviral medication. Although my COVID symptoms... Continue Reading →
It's been a hot minute since I've posted a blog. There are 15 blogs in my drafts that I just couldn't finish. I feel like I lost my voice for a bit. I've lived in pain for over 20 years. This past year; however, I feel like my disease is out of control. Medication barely... Continue Reading →
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