The past few months have been difficult. I've had my medication fail on me. I had been taking Cimzia which I truly loved in the beginning, and it suddenly stopped working. To be fair, I quit taking Methotrexate in December. So I believe that the combo of both Cimzia & MTX were helping but my... Continue Reading →
Make mine a double…
I've been having a rough time with my autoimmune diseases lately. I'm chronically tired, with swollen and hot joints that seem to move around my body without much rhyme or reason. It's exhausting. My rheumy wants me to start taking Enbrel twice a week. I'm really not sure that Enbrel is the biologic for me.... Continue Reading →
Hiding in plain sight….
When people look at me they never see a person who is "sick". I'm often told, "But you don't look sick!". Who suffering from an autoimmune disease hasn't heard that statement a few hundred times. I try to prevent people from seeing how hard life with my body has been lately. It's been so easy... Continue Reading →
Infections and Biologics and Me, Oh my…
I was at work 5 days ago and my hands suddenly swelled, and I felt odd. I woke up the next morning feeling flu-like and out of sorts. I called off from work and went back to bed. I had every intention of going back to work the next day. I thought it was just... Continue Reading →
Long weekend, nothing accomplished
So MLK weekend of 2012 is coming to an end. This weekend, I had planned to clean my home, get organized, etc. Did I accomplish any of it? Not really. Am I mad at myself? Yes. I feel like during the work week, I am so exhausted by the time I get home. Then on... Continue Reading →
My enemy is my friend…
Living with autoimmune diseases is a never ending journey. I've had people tell me that "But you don't look sick", and "Do you know that you are limping?"...hmmmm....you really think I didn't know that I was limping?Each day is a journey because I never really know how I will be feeling. It's the same with... Continue Reading →
Who’s on first
Since Georgia has been sick, I've been putting my health on the back burner. I think focusing on her illness has been good and bad for me. I was so focused on Georgia that I didn't realize how bad my shoulder were. Two cortisone shots later and I'm a new person. Now I have to... Continue Reading →
I’m back…I think…
So, I 've taken some time off from writing this blog. I think the combination of living with RA/Fibro/Sjogren's/Graves'/& DSAP in addition to writing was wearing on me. I'm thinking that I will change the name of this blog. I don't just live with RA. I live with autoimmune diseases. Each take a significant part... Continue Reading →
Humidity is not my friend…
So I'm now fully into the 2nd month without Humira. The summer heat and humidity has been rough but overall I'm hanging in there. My ankles might not agree (they are swollen and sore) but for the most part my RA is cooperating with my decision to travel to Africa. On another note, I recently... Continue Reading →
Hello Summer!
Today was my first day of summer break (I work for a school district). I had tons and tons of plans last night and was going to be an organization queen today! I woke up at 7:00 am and felt like death....so after I put the dog out, I went back for more rest. I... Continue Reading →